{"id":128649,"date":"2019-04-08T15:07:10","date_gmt":"2019-04-08T12:07:10","guid":{"rendered":"http:\/\/www.tvturk.com\/index.php\/gun-gectikce-kaslari-eriyor\/"},"modified":"2019-04-08T15:07:13","modified_gmt":"2019-04-08T12:07:13","slug":"gun-gectikce-kaslari-eriyor","status":"publish","type":"post","link":"http:\/\/www.tvturk.com\/index.php\/gun-gectikce-kaslari-eriyor\/","title":{"rendered":"G\u00fcn ge\u00e7tik\u00e7e kaslar\u0131 eriyor"},"content":{"rendered":"

A\u011fr\u0131\u2019n\u0131n Ele\u015fkirt il\u00e7esinde ya\u015fayan Polat ailesi 13 ya\u015f\u0131ndaki o\u011fullar\u0131 G\u00f6rkem\u2019in tedavisi i\u00e7in yard\u0131m bekliyor. Kas hastal\u0131\u011f\u0131yla m\u00fccadele eden G\u00f6rkem, bilgisayar m\u00fchendisi olmak istedi\u011fini belirterek, “Hastal\u0131\u011f\u0131m y\u00fcz\u00fcnden okula gidemiyorum” dedi.<\/p>\n

A\u011fr\u0131\u2019n\u0131n Ele\u015fkirt il\u00e7esinde ya\u015fayan 13 ya\u015f\u0131ndaki G\u00f6rkem Polat, 5 ya\u015f\u0131ndan beri Duchenne Musk\u00fcler Distrofi (DMD) kas hastal\u0131\u011f\u0131 ile bo\u011fu\u015fuyor. Her ge\u00e7en g\u00fcn kaslar\u0131 eriyen G\u00f6rkem\u2019in maddi imkans\u0131zl\u0131klar ya\u015fayan ailesi, tedavi masraflar\u0131n\u0131 kar\u015f\u0131layamad\u0131\u011f\u0131 i\u00e7in yard\u0131m \u00e7a\u011fr\u0131s\u0131nda bulundu. 5 ya\u015f\u0131ndan itibaren sabit duramamas\u0131 ve s\u00fcrekli d\u00fc\u015fmesi nedeniyle ailesi taraf\u0131ndan hastaneye g\u00f6t\u00fcr\u00fclen G\u00f6rkem\u2019e d\u00fcnyada nadir g\u00f6r\u00fclen Duchenne Musk\u00fcler Distrofi (DMD) kas hastal\u0131\u011f\u0131 te\u015fhisi konuldu. 8 y\u0131ld\u0131r \u00e7ocuklar\u0131 G\u00f6rkem i\u00e7in bir \u00e7are arayan Polat ailesi, sonunda hastal\u0131\u011f\u0131n ilerlemesini engelleyecek k\u00f6k h\u00fccre tedavisiyle umutland\u0131. Fakat maddi anlamda imkans\u0131zl\u0131klar ya\u015fayan aile G\u00f6rkem\u2019in tedavi olabilmesi i\u00e7in gereken paray\u0131 toplayabilmek amac\u0131yla devletin ve yard\u0131msever vatanda\u015flar\u0131n kendilerine yard\u0131m eli uzatmas\u0131 i\u00e7in \u00e7a\u011fr\u0131da bulundu. Te\u015fhis konulduktan itibaren tedaviye ba\u015flayan G\u00f6rkem, 8 y\u0131ld\u0131r b\u00fcy\u00fck \u015fehirlerdeki doktorlar\u0131n g\u00f6zlemi alt\u0131nda. Be\u015f ya\u015f\u0131ndan itibaren y\u00fcr\u00fcmekten kesilen G\u00f6rkem okula gidip gelmekte ya\u015fad\u0131\u011f\u0131 s\u0131k\u0131nt\u0131lar dolay\u0131s\u0131yla okulu b\u0131rakmak zorunda kald\u0131.<\/p>\n

“Maddi imkans\u0131zl\u0131\u011f\u0131n verdi\u011fi \u00e7aresizlikle ne yapaca\u011f\u0131m\u0131z\u0131 bilemez haldeyiz”<\/p>\n

Hastane hastane tedavi i\u00e7in ko\u015fturduklar\u0131n\u0131 ancak tedavinin Hindistan\u2019da bulunan bir hastanede oldu\u011funa dikkat \u00e7eken baba Tekin Polat “G\u00f6rkem \u015fu anda 13 ya\u015f\u0131nda ve 5 ya\u015f\u0131ndan beri bu hastal\u0131kla bo\u011fu\u015fuyor. G\u00fcn ge\u00e7tik\u00e7e hareketleri daha da azal\u0131yor. \u00c7ocu\u011fumuz g\u00f6zlerimizin \u00f6n\u00fcnde eriyor. Ger\u00e7ekten \u00e7aresiziz. Kas hastal\u0131klar\u0131 alan\u0131nda tedavi olabilecek her hastaneye gittik. \u0130stanbul, Ankara gibi b\u00fcy\u00fck \u015fehirlerde bile bu hastal\u0131\u011fa \u00e7are olmad\u0131\u011f\u0131n\u0131 s\u00f6ylediler. \u0130lerleyen s\u00fcre\u00e7te T\u00fcrkiye d\u0131\u015f\u0131nda Avrupa \u00fclkelerinde k\u00f6k h\u00fccre tedavisiyle bu hastal\u0131\u011f\u0131 durdurabilme tedavisi oldu\u011funu \u00f6\u011frendik. En sonunda da \u0130stanbul\u2019daki doktorlar taraf\u0131ndan Hindistan\u2019da maliyeti 30 bin dolar olan k\u00f6k h\u00fccre tedavisiyle bilgilendirildik. Fakat bu paray\u0131 denkle\u015ftirmemiz ne yaz\u0131k ki m\u00fcmk\u00fcn de\u011fil. \u00c7ocu\u011fumuz i\u00e7in her yola ba\u015fvurduk. Elimizden gelen her \u015feyi yapmaya haz\u0131r\u0131z ama maddi imkans\u0131zl\u0131\u011f\u0131n verdi\u011fi \u00e7aresizlikle ne yapaca\u011f\u0131m\u0131z\u0131 bilemez haldeyiz” dedi.<\/p>\n

Hastal\u0131\u011f\u0131n genetik oldu\u011funu s\u00f6yleyen Tekin Polat, aileden 5 ki\u015finin Duchenne Musk\u00fcler Distrofi (DMD) kas hastal\u0131\u011f\u0131ndan 20-25 ya\u015flar\u0131nda hayatlar\u0131n\u0131 kaybettiklerini dile getirerek, “Biz \u00e7ocu\u011fumuzun tedavi olmas\u0131n\u0131, di\u011fer arkada\u015flar\u0131 gibi y\u00fcr\u00fcmesini, ko\u015fmas\u0131n\u0131, gezmesini ve okuluna devam etmesini istiyoruz. Tedavi maliyeti olan 30 bin dolar\u0131 denkle\u015ftirmemiz, bizler i\u00e7in \u00e7ok zor. Bu konuda hay\u0131rseverlerden ve duyarl\u0131 olan herkesten Allah r\u0131zas\u0131 i\u00e7in yard\u0131m elini uzatmalar\u0131n\u0131 istiyoruz. Rabbim kimseye b\u00f6yle bir evlat ac\u0131s\u0131 g\u00f6stermesin. Ger\u00e7ekten \u00e7ok zor bir durumday\u0131z” \u015feklinde konu\u015ftu.<\/p>\n

“Az \u00e7ok demeden G\u00f6rkem\u2019in umuduna destekte bulunal\u0131m”<\/p>\n

Valilikten yard\u0131m toplamak i\u00e7in izin belgesi ald\u0131\u011f\u0131n\u0131 dile getiren baba Polat, “T\u00fcrkiye genelinde yard\u0131m toplayabilmemiz i\u00e7in 15 \u015eubat\u2019ta resmi olarak izin belgesi ald\u0131k. Biz yakla\u015f\u0131k 5 ayd\u0131r bu m\u00fccadelemizi s\u00fcrd\u00fcrmekteyiz. Sosyal medyada payla\u015f\u0131mlarda bulunarak yakla\u015f\u0131k olarak 50 bin TL civar\u0131 bir para toplanm\u0131\u015f bulunmakta. Di\u011fer maliyet i\u00e7in biz \u00e7ok s\u0131k\u0131nt\u0131lar \u00e7ekmekteyiz. Bunun i\u00e7in hay\u0131rseverlerden, i\u015f adamlar\u0131m\u0131zdan, Ele\u015fkirt Kaymakam\u0131m\u0131zdan, say\u0131n valimizden, milletvekillerimizden bu konuda bize yard\u0131mda bulunmalar\u0131n\u0131 talep ediyorum. Az \u00e7ok demeden G\u00f6rkem\u2019in umuduna destekte bulunal\u0131m” ifadelerini kulland\u0131.<\/p>\n

O\u011flunun sa\u011fl\u0131\u011f\u0131na kavu\u015fmas\u0131 i\u00e7in tedaviyi kar\u015f\u0131layacak maddi durumlar\u0131n\u0131n olmad\u0131\u011f\u0131n\u0131 s\u00f6yleyen Polat, o\u011flunun \u00f6l\u00fcm tehlikesiyle kar\u015f\u0131 kar\u015f\u0131ya oldu\u011funu ifade etti. Hastal\u0131\u011f\u0131n\u0131n te\u015fhisi, tedavisi ve gerekli g\u00f6r\u00fclen i\u00e7in elde avu\u00e7ta ne varsa harcad\u0131\u011f\u0131n\u0131, ancak kesin bir sonuca ula\u015f\u0131lamad\u0131\u011f\u0131n\u0131 belirten baba Polat o\u011flunun g\u00fcn ge\u00e7tik\u00e7e hareketlerinin azald\u0131\u011f\u0131n\u0131 vurgulad\u0131.<\/p>\n

En b\u00fcy\u00fck hayali olan bilgisayar m\u00fchendisi olmak<\/p>\n

Tekerlekli sandalyede gidip geldi\u011fini s\u00f6yleyen G\u00f6rkem Polat, b\u00fct\u00fcn ihtiya\u00e7lar\u0131n\u0131 ailesi yard\u0131m\u0131yla kar\u015f\u0131l\u0131yor. Teknolojiyle yak\u0131ndan ilgili olan G\u00f6rkem Polat, en b\u00fcy\u00fck hayalinin bilgisayar m\u00fchendisi olmak oldu\u011funu belirterek, “Hastal\u0131\u011f\u0131m y\u00fcz\u00fcnden okula gidip gelmekte zorluk \u00e7ekiyorum ve okula gidemiyorum. Ben de tedavimi olup okuluma gitmek istiyorum. Bu y\u00fczden de yard\u0131m istiyorum. Tedavi olmam i\u00e7in Hindistan\u2019da 30 bin dolarl\u0131k bir tedavi var. Ben de o tedaviye gidip iyile\u015fmek arkada\u015flar\u0131m gibi ko\u015fup oynamak istiyorum. Hay\u0131rseverlerden, herkesten yard\u0131m istiyorum\u2019\u2019 ifadelerini kulland\u0131.<\/p>\n

Sesini duyurabildi\u011fi her yere ula\u015fmaya \u00e7al\u0131\u015fan ailenin, G\u00f6rkem Polat Ad\u0131na a\u00e7m\u0131\u015f olduklar\u0131 Ziraat Bankas\u0131 Ele\u015fkirt\/A\u011fr\u0131 \u015eubesi; Hesap numaras\u0131: 0416 8705 0207 5002 \u0130BAN Numaras\u0131 TR 7800 0100 0416 8705 0207 5002

\"G\u00fcn <\/a> <\/div> <\/div>
\"G\u00fcn <\/a> <\/div>
\"G\u00fcn <\/a> <\/div> <\/div> <\/div> <\/div><\/p>\n","protected":false},"excerpt":{"rendered":"

A\u011eRI\u2019NIN ELE\u015eK\u0130RT \u0130L\u00c7ES\u0130NDE YA\u015eAYAN POLAT A\u0130LES\u0130 13 YA\u015eINDAK\u0130 O\u011eULLARI G\u00d6RKEM\u2019\u0130N TEDAV\u0130S\u0130 \u0130\u00c7\u0130N YARDIM BEKL\u0130YOR.<\/p>\n","protected":false},"author":1,"featured_media":128650,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[1112,7679,2579,30056],"class_list":["post-128649","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-genel","tag-eriyor","tag-gectikce","tag-gun","tag-kaslari"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/i0.wp.com\/www.tvturk.com\/wp-content\/uploads\/2019\/04\/gun-gectikce-kaslari-eriyor_1141fd3.jpg?fit=1000%2C704","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/paKIfm-xsZ","_links":{"self":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/128649","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/comments?post=128649"}],"version-history":[{"count":1,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/128649\/revisions"}],"predecessor-version":[{"id":128654,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/128649\/revisions\/128654"}],"wp:featuredmedia":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media\/128650"}],"wp:attachment":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media?parent=128649"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/categories?post=128649"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/tags?post=128649"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}