D\u00fcnya Hemofili G\u00fcn\u00fc\u2019n\u00fcn her y\u0131l 17 Nisanda kutland\u0131\u011f\u0131n\u0131 s\u00f6yleyen Dr. Z\u00fcleyha \u00d6zer Yazgan , her y\u0131l ,hemofili ve di\u011fer kal\u0131tsal kanama bozukluklar\u0131 hakk\u0131ndaki fark\u0131ndal\u0131\u011f\u0131 art\u0131rmak i\u00e7in d\u00fcnya \u00e7ap\u0131nda kutlanmakta oldu\u011fu belirtti.<\/p>\n
D\u00fcnya Hemofili G\u00fcn\u00fc 1989 y\u0131l\u0131nda, D\u00fcnya Hemofili Federasyonu (WFH) taraf\u0131ndan kurucusu Frank Schnabel\u2019in do\u011fum g\u00fcn\u00fc onuruna 17 Nisan\u2019da kutlanmaya ba\u015fland\u0131.<\/p>\n
Dr. Suat G\u00fcnsel Hastanesi \u0130\u00e7 Hastal\u0131klar\u0131 Uzman\u0131 Dr. Z\u00fcleyha \u00d6zer Yazgan, hemofili hastal\u0131\u011f\u0131n\u0131n, kandaki p\u0131ht\u0131la\u015fmay\u0131 sa\u011flayan fakt\u00f6rlerin eksikli\u011fi nedeniyle ortaya \u00e7\u0131kan, anormal kanamalara ve bu nedenle \u00f6l\u00fcme ve sakatl\u0131klara yol a\u00e7abilen kal\u0131tsal bir hastal\u0131k oldu\u011funu ifade etti.<\/p>\n
Hemofili erkek \u00e7ocuklar\u0131n hasta, k\u0131z \u00e7ocuklar\u0131n ta\u015f\u0131y\u0131c\u0131 oldu\u011fu bir hastal\u0131k grubudur<\/p>\n
Dr. Z\u00fcleyha \u00d6zer Yazgan, \u201cHemofilinin ba\u015fl\u0131ca 2 tipi vard\u0131r; Hemofili A\u2019da fakt\u00f6r 8 (fakt\u00f6r VIII), Hemofili B\u2019de ise fakt\u00f6r 9 (fakt\u00f6r IX) eksik veya \u00e7ok d\u00fc\u015f\u00fckt\u00fcr. Nadir bir kanama bozuklu\u011fu olan hemofili, genetik ge\u00e7i\u015f g\u00f6sterir, \u00e7o\u011funlukla erkek \u00e7ocuklar\u0131n hasta, k\u0131z \u00e7ocuklar\u0131n ta\u015f\u0131y\u0131c\u0131 oldu\u011fu bir hastal\u0131k grubudur. \u00c7ok nadiren hasta bir erkek ile ta\u015f\u0131y\u0131c\u0131 bir kad\u0131n\u0131n evlili\u011finden do\u011fan k\u0131z \u00e7ocuklar\u0131nda da hastal\u0131k g\u00f6r\u00fclebilir\u201d dedi.<\/p>\n
Kanaman\u0131n uzun s\u00fcrmesi, hemofiliyi akla getirmektedir<\/p>\n
Erken \u00e7ocukluk d\u00f6neminde v\u00fccutta kolay morarmalar, \u00f6zellikle eklem i\u00e7i ve kas i\u00e7i kendili\u011finden olan kanamalar\u0131n varl\u0131\u011f\u0131ndan bahseden Dr. Z\u00fcleyha \u00d6zer Yazgan: \u201cGiri\u015fimler ya da travma sonras\u0131 kanaman\u0131n beklenenden uzun s\u00fcrmesi, hemofiliyi akla getirmelidir. Do\u011fumdan itibaren, fakt\u00f6r d\u00fczeylerindeki eksikli\u011fin ciddiyetine g\u00f6re hastal\u0131k klinik bulgu verir. Fakt\u00f6r eksikli\u011fi ileri d\u00fczeyde olanlarda klinik bulgular bebeklikten itibaren g\u00f6r\u00fclmeye ba\u015flar. Do\u011fum esnas\u0131nda kar\u015f\u0131la\u015f\u0131lan travman\u0131n cinsine ve \u015fiddetine ba\u011fl\u0131 olarak, kafa i\u00e7i kanamalar olabilir. Hafif d\u00fczeyde fakt\u00f6r eksikli\u011fi olan hemofili hastalar\u0131nda klinik bulgular daha ciddi travmalar veya cerrahi giri\u015fimler sonucu ortaya \u00e7\u0131kt\u0131\u011f\u0131 i\u00e7in, tan\u0131 daha ileri ya\u015flarda konabilmektedir. Orta ve hafif fakt\u00f6r eksikli\u011fi olanlarda emekleme-y\u00fcr\u00fcme d\u00f6nemiyle birlikte eklem i\u00e7inde kanamalar, a\u011f\u0131z i\u00e7inde kendili\u011finden olu\u015fan kanamalar, kas i\u00e7i kanamalar olmaya ba\u015flar\u201d dedi.<\/p>\n
\u00d6m\u00fcr boyu s\u00fcren bir hastal\u0131k<\/p>\n
Dr. Z\u00fcleyha \u00d6zer Yazgan, \u201c\u00d6m\u00fcr boyu s\u00fcren bir hastal\u0131k olmas\u0131, tedavi maliyetinin y\u00fcksekli\u011fi ve ciddi komplikasyonlara yol a\u00e7mas\u0131 nedeniyle hemofili nadir ama olduk\u00e7a \u00f6nemli bir hastal\u0131kt\u0131r. Tedavisi, insan kan\u0131ndan elde edilen eksik p\u0131ht\u0131la\u015fma fakt\u00f6rlerinin yerine konulmas\u0131 \u015feklindedir. Uzun d\u00f6nemde \u00f6zellikle tekrarlayan eklem i\u00e7i kanamalar, eklemde sertle\u015fmeye (ankiloz) ve kal\u0131c\u0131 komplikasyonlara, bu nedenle ya\u015fam standard\u0131n\u0131n d\u00fc\u015fmesine ve ciddi i\u015f g\u00fcc\u00fc kayb\u0131na neden olabilmektedir\u201d ifadelerine yer verdi.<\/p>\n","protected":false},"excerpt":{"rendered":"
D\u00dcNYA HEMOF\u0130L\u0130 G\u00dcN\u00dc\u2019N\u00dcN HER YIL 17 N\u0130SANDA KUTLANDI\u011eINI S\u00d6YLEYEN DR. Z\u00dcLEYHA \u00d6ZER YAZGAN , HER YIL ,HEMOF\u0130L\u0130 VE D\u0130\u011eER KALITSAL KANAMA BOZUKLUKLARI HAKKINDAK\u0130 FARKINDALI\u011eI ARTIRMAK \u0130\u00c7\u0130N D\u00dcNYA \u00c7APINDA KUTLANMAKTA OLDU\u011eU BEL\u0130RTT\u0130.<\/p>\n","protected":false},"author":1,"featured_media":139844,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[31685,31684,3572,2164,482],"class_list":["post-139843","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-genel","tag-hemofili","tag-kanamalarda","tag-riski","tag-suren","tag-uzun"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/i0.wp.com\/www.tvturk.com\/wp-content\/uploads\/2019\/04\/uzun-suren-kanamalarda-hemofili-riski_20d928d.jpg?fit=288%2C359","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/paKIfm-Anx","_links":{"self":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/139843","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/comments?post=139843"}],"version-history":[{"count":0,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/139843\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media\/139844"}],"wp:attachment":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media?parent=139843"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/categories?post=139843"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/tags?post=139843"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}