Beyin Pili Hastalar\u0131 Derne\u011fi (BEYP\u0130LDER) taraf\u0131ndan d\u00fczenlenen iftara, dernek y\u00f6neticileri ve \u00fcyelerinin yan\u0131 s\u0131ra \u00e7ok say\u0131da Parkinson ve hareket bozuklu\u011fu hastas\u0131n\u0131 bir araya getirdi. Beyin pili ameliyat\u0131 ge\u00e7irerek ya\u015fam kalitelerini geri alm\u0131\u015f hastalar, hastal\u0131k ve tedavi s\u00fcrecinde ya\u015fad\u0131klar\u0131n\u0131 payla\u015farak bu hastal\u0131ktan muzdarip di\u011fer hastalara da umut oldu.<\/p>\n
Ba\u015fta Parkinson olmak \u00fczere Generalize Distoni ve Esansiyel Tremor hastas\u0131 olup, beyin pili ameliyat\u0131 ge\u00e7irerek ya\u015fam kalitelerini geri alabilmi\u015f, hayattan kopmadan ya\u015fam\u0131na devam etmeye karar vermi\u015f bir grup hasta ve hasta yak\u0131n\u0131 taraf\u0131ndan 2014 y\u0131l\u0131nda kurulan ve ge\u00e7en sene k\u0131rd\u0131klar\u0131 D\u00fcnya Rekoru ile Guinness Rekorlar Kitab\u0131\u2019na girmeye hak kazanan Beyin Pili Hastalar\u0131 Derne\u011fi (BEYP\u0130LDER), \u00e7ok say\u0131da Parkinson ve hareket bozuklu\u011fu hastas\u0131yla iftar yeme\u011finde bir araya geldi. Beyin Pili Hastalar\u0131 Derne\u011fi Ba\u015fkan\u0131 Fehime Baylan\u2019\u0131n a\u00e7\u0131l\u0131\u015f konu\u015fmas\u0131yla ba\u015flayan yemekte, beyin pili tedavisi ile hayata yeniden merhaba diyen hastalar, bu hastal\u0131ktan muzdarip olan di\u011fer hastalar ile bir arada olma f\u0131rsat\u0131 buldu. Hastal\u0131k ve tedavi s\u00fcrecinde ya\u015fad\u0131klar\u0131 tecr\u00fcbeleri birbirleriyle payla\u015fan hastalar, m\u00fczik dinletisiyle de moral buldu.<\/p>\n
\u0130ftar yeme\u011finde Parkinsonlu hasta ve hasta yak\u0131nlar\u0131yla bir araya gelmekten b\u00fcy\u00fck mutluluk duydu\u011funu dile getiren BEYP\u0130LDER Ba\u015fkan\u0131 Fehime Baylan: “Parkinson ba\u015fta olmak \u00fczere, Generalize Distoni, Esansiyel Tremor gibi bir tak\u0131m hareket bozukluklar\u0131 hastal\u0131klar\u0131 \u00fclkemizde bir tabu olarak g\u00f6r\u00fcl\u00fcyor. Ne yaz\u0131k ki hastalar tedavi konusunda yeterli bilgiye sahip olmad\u0131klar\u0131 i\u00e7in sosyal ya\u015famlar\u0131n\u0131 k\u0131s\u0131tl\u0131yorlar. \u0130\u015fte bu sebeple beyin pili ameliyat\u0131n\u0131 ge\u00e7irerek sosyal ya\u015famlar\u0131n\u0131 geri kazanan hastalar taraf\u0131ndan kurulan BEYP\u0130LDER, hem hastalar\u0131 hem de hasta yak\u0131nlar\u0131n\u0131 bilin\u00e7lendirmeyi ve beyin tedavisi hakk\u0131nda toplumda fark\u0131ndal\u0131k olu\u015fturmay\u0131 ama\u00e7l\u0131yor. Bug\u00fcn burada Parkinson ve hareket bozuklu\u011fu olan hastalar ile bir araday\u0131z. Beyin pili tedavisi ile ya\u015fam kalitemizi geri ald\u0131\u011f\u0131m\u0131z\u0131 g\u00f6stermek i\u00e7in \u00e7\u0131kt\u0131\u011f\u0131m\u0131z bu yolda, ya\u015fad\u0131klar\u0131m\u0131z\u0131 ve tecr\u00fcbelerimizi payla\u015fmaktan b\u00fcy\u00fck mutluluk duyuyoruz. Bu hastal\u0131kla m\u00fccadele eden ki\u015filere umut olabiliyorsak ne mutlu bize” dedi.<\/p>\n
\u0130ftar davetine kat\u0131lan Medipol \u00dcniversitesi Parkinson ve Hareket Bozukluklar\u0131 Merkezi (PARMER) Beyin ve Sinir Cerrahisi Uzman\u0131 Op. Dr. Ali Z\u0131rh: “Parkinson hastal\u0131\u011f\u0131 beyinde dopamin ad\u0131 verilen bir maddenin eksili\u011fi ile ortaya \u00e7\u0131k\u0131yor. Hareketlerde yava\u015flama, y\u00fcz hatlar\u0131nda donukluk, maske y\u00fcz dedi\u011fimiz ifade, ellerde para sayar tarzda titreme, tutukluk ve kat\u0131l\u0131k gibi bir tak\u0131m bulgular ile kendini g\u00f6steriyor. Hastal\u0131\u011f\u0131n ilk y\u0131llar\u0131nda hastalar ila\u00e7 tedavisine iyi cevap veriyorlar. Ancak aradan y\u0131llar ge\u00e7tik\u00e7e hastal\u0131\u011f\u0131n ilerlemesi, ila\u00e7lara v\u00fccudun al\u0131\u015fmas\u0131, yo\u011fun ila\u00e7 yan etkileri ba\u015flamas\u0131 ve k\u00fc\u00e7\u00fck grup hastalarda ba\u015ftan ila\u00e7 tedavisine cevap vermemesi \u00fczerine hastalara beyin pili ameliyatlar\u0131yla yard\u0131mc\u0131 olabiliyoruz. Bu ameliyatlar\u0131 hastalar uyan\u0131k iken, konu\u015fa konu\u015fa ve hastalarla sohbet ederek yap\u0131yoruz. Beyin pili tedavisini hastal\u0131\u011f\u0131n saatini geri almak diye tan\u0131mlayabilirim. \u00d6rne\u011fin; 10 y\u0131ll\u0131k bir hastay\u0131 ameliyat etti\u011fimizde hastal\u0131\u011f\u0131n 1\u2019inci ya da 2\u2019nci y\u0131l\u0131 haline getirebiliyoruz. Bu da ba\u011f\u0131ms\u0131z ya\u015fayamayan, ba\u015fkalar\u0131n\u0131n yard\u0131m\u0131yla hareket edebilen, g\u00fcnl\u00fck sosyal ya\u015fant\u0131s\u0131n\u0131 s\u00fcrd\u00fcremeyen hastalar\u0131n yeniden eski ya\u015fant\u0131lar\u0131na kavu\u015fmas\u0131, normale yak\u0131n ya\u015fam kalitesine ula\u015fmas\u0131 ve \u00e7o\u011funun mesle\u011fine geriye d\u00f6nebilmesi anlam\u0131na geliyor” \u015feklinde konu\u015ftu.<\/p>\n","protected":false},"excerpt":{"rendered":"
BEY\u0130N P\u0130L\u0130 HASTALARI DERNE\u011e\u0130 (BEYP\u0130LDER) TARAFINDAN D\u00dcZENLENEN \u0130FTARA, DERNEK Y\u00d6NET\u0130C\u0130LER\u0130 VE \u00dcYELER\u0130N\u0130N YANI SIRA \u00c7OK SAYIDA PARK\u0130NSON VE HAREKET BOZUKLU\u011eU HASTASINI B\u0130R ARAYA GET\u0130RD\u0130.<\/p>\n","protected":false},"author":1,"featured_media":164068,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"jetpack_post_was_ever_published":false},"categories":[1],"tags":[38915,126,4054,125,6333,127,67,30333,7047,2763],"class_list":["post-164067","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-genel","tag-beypilder","tag-araya","tag-beyin","tag-bir","tag-dernegi","tag-geldi","tag-hastalari","tag-iftar","tag-pili","tag-yemeginde"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/i0.wp.com\/www.tvturk.com\/wp-content\/uploads\/2019\/05\/beyin-pili-hastalari-dernegi-beypilder-iftar-yemeginde-bir-araya-geldi_d7db9af.jpg?fit=1000%2C666","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/paKIfm-GGf","_links":{"self":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/164067","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/comments?post=164067"}],"version-history":[{"count":0,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/164067\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media\/164068"}],"wp:attachment":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media?parent=164067"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/categories?post=164067"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/tags?post=164067"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}