Marmaris\u2019te ya\u015fayan Duchenne kas hastas\u0131 olan 8 ya\u015f\u0131ndaki Ayaz Can Uyar, kendi hastal\u0131klar\u0131na y\u00f6nelik tedavi merkezi yap\u0131lmas\u0131n\u0131 istiyor.<\/p>\n
Duchenne kas hastas\u0131 \u00e7ocuklar ve aileleri, k\u0131sa s\u00fcrede tedavi olunabilmesi i\u00e7in tedavi merkezi istiyor. T\u00fcrkiye\u2019de 5 bin DMD kas hastas\u0131 \u00e7ocuk bulunuyor. Bu hastalardan biri de Marmaris\u2019te ya\u015fayan ikinci s\u0131n\u0131f \u00f6\u011frencisi Ayaz Can Uyar. Hastal\u0131\u011f\u0131ndan dolay\u0131 tekerlekli sandalyeye mahkum olan Ayaz Can, \u00f6\u011frenim g\u00f6rd\u00fc\u011f\u00fc okulu \u015eehit Ahmet Benler \u0130lkokulu\u2019na annesi ve babas\u0131n\u0131n yard\u0131m\u0131yla geliyor. \u00d6\u011fretmenlerinden ve arkada\u015flar\u0131ndan b\u00fcy\u00fck destek g\u00f6ren Ayaz Can i\u00e7in okulda, ge\u00e7ti\u011fimiz g\u00fcnlerde \u201cY\u00fcr\u00fcy\u00fc\u015fle Fark\u0131ndal\u0131k Etkinli\u011fi\u201d d\u00fczenlendi. Etkinli\u011fi d\u00fczenleyen okul \u00e7al\u0131\u015fanlar\u0131na Duchenne Kas Hastal\u0131\u011f\u0131 ile M\u00fccadele Derne\u011fi (DMD) taraf\u0131nda plaket verildi. Plaketi, okul idarecilerine dernek ad\u0131na Ayaz Can Uyar verdi.<\/p>\n
\u201cBir\u00e7ok \u00e7ocu\u011fumuzu da bu hastal\u0131k neticesinde kaybettik\u201d<\/p>\n
Kas hastas\u0131 \u00e7ocuklara \u00f6zel bir tedavi merkezinin yap\u0131lmas\u0131n\u0131 isteyen DMD T\u00fcrkiye Marmaris Temsilcisi ve Ayaz Can\u2019\u0131n babas\u0131 \u015eeref Uyar, \u201cO\u011flumuz Ayaz Can sekiz ya\u015f\u0131nda. Ayaz Can \u00e7ok \u015fansl\u0131 \u00e7\u00fcnk\u00fc bir\u00e7ok okulda y\u00fcr\u00fcy\u00fc\u015f rampalar\u0131 yok. \u00c7ocuklar\u0131m\u0131z zemin katta okuyam\u0131yor \u00e7ocuklar\u0131m\u0131z, daha y\u00fcksek katlara \u00e7\u0131kmak zorunda \u00e7ocuklar\u0131m\u0131z. Bu hastalar\u0131n bir g\u00f6stergesi de merdiven \u00e7\u0131kam\u0131yorlar. Bu \u00e7ocuklar i\u00e7in sa\u011fl\u0131k merkezleri a\u00e7\u0131ls\u0131n. Bu \u00e7ocuklar bir an \u00f6nce tedavilerini olsun. \u00dclkemizde 5 bin kas hastas\u0131 \u00e7ocu\u011fumuz var. Bu \u00e7ocuklar\u0131n tedavi edilip bir an \u00f6nce y\u00fcr\u00fcmesini istiyoruz. Bu \u00e7ocuklar art\u0131k y\u00fcr\u00fcyebilsin, ko\u015fabilsin. Bu \u00e7ocuklar\u0131n art\u0131k ko\u015fmas\u0131 i\u00e7in birileri umut olsun, umudumuza destek olsunlar. Kas hastalar\u0131n\u0131n bak\u0131m\u0131 \u00e7ok zor. \u0130leriki evrelerde yata\u011fa ba\u011flan\u0131yorlar. Bir\u00e7ok \u00e7ocu\u011fumuzu da bu hastal\u0131k neticesinde kaybettik. \u015eimdi ila\u00e7larla beraber ya\u015fam s\u00fcreleri biraz uzat\u0131ld\u0131 \u201c dedi.<\/p>\n","protected":false},"excerpt":{"rendered":"
DUCHENNE KAS HASTASI AYAZ CAN: \u201cCUMHURBA\u015eKANIM BEN Y\u00dcR\u00dcMEK \u0130ST\u0130YORUM, TEDAV\u0130 MERKEZ\u0130 \u0130ST\u0130YORUZ\u201d<\/p>\n","protected":false},"author":1,"featured_media":164784,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[33288,930,39192,11633,2674,4263,295,144],"class_list":["post-164783","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-genel","tag-ayaz","tag-can","tag-duchenne","tag-hastasi","tag-istiyoruz","tag-kas","tag-merkezi","tag-tedavi"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/i0.wp.com\/www.tvturk.com\/wp-content\/uploads\/2019\/06\/duchenne-kas-hastasi-ayaz-can-tedavi-merkezi-istiyoruz_d4aa004.jpg?fit=1000%2C666","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/paKIfm-GRN","_links":{"self":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/164783","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/comments?post=164783"}],"version-history":[{"count":0,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/164783\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media\/164784"}],"wp:attachment":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media?parent=164783"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/categories?post=164783"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/tags?post=164783"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}