Batmanl\u0131 \u0130hsan Abay\u2019\u0131n iki \u00e7ocu\u011fu nadir g\u00f6r\u00fclen beyincik erimesi hastal\u0131\u011f\u0131na yakaland\u0131. Abay, tedavi umutlar\u0131 t\u00fckenen ve yata\u011fa ba\u011f\u0131ml\u0131 hale gelen 10 ya\u015f\u0131ndaki o\u011flunun ard\u0131ndan 3 bu\u00e7uk ya\u015f\u0131ndaki o\u011flunun da ayn\u0131 duruma d\u00fc\u015fmemesi i\u00e7in yetkilere yard\u0131m \u00e7a\u011fr\u0131s\u0131nda bulundu.<\/p>\n
Batmanl\u0131 Fatma ve \u0130hsan Abay \u00e7iftinin Emircan Mert isimli \u00e7ocuklar\u0131na beyincik erimesi tan\u0131s\u0131 konuldu. Y\u0131llard\u0131r \u00e7almad\u0131k kap\u0131 b\u0131rakmayan \u00e7ift, \u00e7ocuklar\u0131n\u0131 tedavi ettiremedi. D\u00fcnyada nadiren g\u00f6r\u00fclen hastal\u0131k nedeni ile yata\u011fa ba\u011f\u0131ml\u0131 ya\u015famaya ba\u015flayan 10 ya\u015f\u0131ndaki Emircan Mert i\u00e7in kara kara d\u00fc\u015f\u00fcnen Abay \u00e7ifti, hayatlar\u0131n\u0131n \u015fokunu 3 bu\u00e7uk ya\u015f\u0131ndaki \u00e7ocuklar\u0131n\u0131n da ayn\u0131 hastal\u0131\u011fa yakalanmas\u0131 ile ya\u015fad\u0131. \u0130lk \u00e7ocuklar\u0131n\u0131n tedavilerini yapt\u0131ramayan aile, ikinci \u00e7ocuklar\u0131n\u0131 kurtarmak i\u00e7in yetkililere \u00e7a\u011fr\u0131da bulundu.<\/p>\n
\u201c\u0130lac\u0131n T\u00fcrkiye\u2019ye getirilmesini bekliyoruz\u201d<\/p>\n
Yakla\u015f\u0131k 6 y\u0131ld\u0131r Mert i\u00e7in hastane hastane gezen Abay \u00e7ifti, son bir y\u0131ld\u0131r art\u0131k tedavisi m\u00fcmk\u00fcn olmad\u0131\u011f\u0131ndan dolay\u0131 \u00e7ocuklar\u0131na evde bakmaya ba\u015flad\u0131. B\u00fcy\u00fck \u00e7ocu\u011fu Mert i\u00e7in art\u0131k umutlar\u0131n t\u00fckendi\u011fini belirten baba Abay, di\u011fer o\u011flu \u00c7\u0131nar\u2019\u0131n tedavi ettirilmesini istedi. Baba \u0130hsan Abay, “Emircan o\u011flum 4 ya\u015f\u0131ndayken havale ge\u00e7irdi. Havale ge\u00e7irdikten sonra doktora g\u00f6t\u00fcrd\u00fck. Profes\u00f6re g\u00f6t\u00fcrd\u00fck, yani s\u0131radan bir doktora da g\u00f6t\u00fcrmedik. Yapt\u0131klar\u0131 tahlillerde \u2018\u015fimdilik bir \u015fey yok\u2019 dediler. Birka\u00e7 ay ge\u00e7ti, sonra tekrar havale ge\u00e7irdi. Birka\u00e7 defa tekrarlan\u0131nca Diyarbak\u0131r\u2019daki doktora g\u00f6t\u00fcrd\u00fcm. O doktor da kan tahlilleri filan istedi. Ankara\u2019ya g\u00f6t\u00fcrd\u00fcm. Ankara\u2019da birka\u00e7 ay dola\u015ft\u0131rd\u0131m, tetkikler yapt\u0131rd\u0131m. Belli bir s\u00fcre sonra \u00e7ocu\u011fum yata\u011fa d\u00fc\u015ft\u00fc. Yatalak olduktan sonra u\u011fra\u015fsak bile bir faydas\u0131 olmayaca\u011f\u0131n\u0131 s\u00f6ylediler. Art\u0131k kabullendim. Normal ila\u00e7 vererek 6-7 y\u0131ld\u0131r b\u00f6yle yatalak bir \u015fekilde \u00e7ocu\u011fuma bak\u0131yorum. \u015eimdi k\u00fc\u00e7\u00fck o\u011flum 3 bu\u00e7uk ya\u015f\u0131nda. Bu \u00e7ocu\u011fum da havale ge\u00e7irdi. Hemen Diyarbak\u0131r\u2019daki profes\u00f6re g\u00f6t\u00fcrd\u00fcm. Doktor hemen tahlilleri ba\u015flatal\u0131m dedi. A\u011fabeyi gibi NCL2 hastal\u0131\u011f\u0131n\u0131n olmas\u0131ndan \u015f\u00fcphelendi\u011fi i\u00e7in hemen tahlilleri ba\u015flatal\u0131m. Tahlil Diyarbak\u0131r\u2019da al\u0131n\u0131yor, Almanya\u2019ya g\u00f6nderiliyor. 4-5 g\u00fcn \u00f6nce sonu\u00e7lar\u0131 \u00f6\u011frendik. Dediler ki tedavisi var. Biz de e\u011fer tedavisi varsa imkanlar\u0131m\u0131z \u00f6l\u00e7\u00fcs\u00fcnde bakar\u0131z en az\u0131ndan bu \u00e7ocu\u011fumuzu kurtar\u0131r\u0131z. Tedavisi nedir diye sordu\u011fumda Almanya\u2019da bir enzim oldu\u011funu s\u00f6ylediler. Enzim beyine tak\u0131l\u0131yor, iki haftada bir enzim veriliyor ve \u00e7ocu\u011fun hastal\u0131\u011f\u0131 durduruluyor. Tedavinin \u00fccretine gelelim, bir matematik \u00f6\u011fretmeni olarak hesaplayamad\u0131m. 702 bin eurodan bahsediyorum. Bir y\u0131ll\u0131k maliyeti. Bu hastal\u0131k her y\u0131l tedavi olmas\u0131 gereken bir hastal\u0131k, yani sadece bir y\u0131ll\u0131k tedavi de\u011fil. Almanya\u2019daki ya da Amerika\u2019daki bir y\u0131ll\u0131k tedavi maliyeti en az 702 bin euro. Bizim talebimiz \u00f6zellikle devlet yetkililerinden bu ilac\u0131n bir an \u00f6nce T\u00fcrkiye\u2019ye getirilmesidir” dedi.<\/p>\n
“\u00c7ocuklar\u0131m g\u00f6zlerimin \u00f6n\u00fcnde \u00f6lmesin”<\/p>\n
\u00c7ocuklar\u0131n\u0131n g\u00f6zlerinin \u00f6n\u00fcnde \u00f6lmesini istemedi\u011fini belirten Abay, \u201cBen bir \u00e7ocu\u011fumu kaybetmek \u00fczereyim. K\u00fc\u00e7\u00fck \u00e7ocu\u011fum ayakta dola\u015f\u0131yor, benimle konu\u015fuyor, g\u00f6z\u00fcm\u00fcn \u00f6n\u00fcnde her g\u00fcn eriyor. Bu \u00e7ocu\u011fumun \u00f6lmesini istemiyorum. Devlet b\u00fcy\u00fcklerinden, Cumhurba\u015fkan\u0131mdan, bakanlardan iste\u011fim bu ila\u00e7 bir an \u00f6nce T\u00fcrkiye\u2019ye getirilsin. \u00c7\u00fcnk\u00fc bu \u00e7ocuklar\u0131n de\u011feri ekonomiyle \u00f6l\u00e7\u00fclmez. Ke\u015fke benim maddi imkan\u0131m olsayd\u0131 da tedavi ettirebilseydim. \u00c7evremdeki e\u015f dost sa\u011f olsunlar herkes yard\u0131mc\u0131 olal\u0131m diyorlar. Ama yard\u0131mc\u0131 olabilecekleri bir \u015fey de\u011fil. Ancak bunu devlet \u00fcstlenirse bu i\u015f olabilir. Bu Babalar G\u00fcn\u00fc\u2019nde in\u015fallah kimse bu ac\u0131y\u0131 \u00e7ekmez\u201d diye konu\u015ftu.<\/p>\n","protected":false},"excerpt":{"rendered":"
BATMANLI \u0130HSAN ABAY\u2019IN \u0130K\u0130 \u00c7OCU\u011eU NAD\u0130R G\u00d6R\u00dcLEN BEY\u0130NC\u0130K ER\u0130MES\u0130 HASTALI\u011eINA YAKALANDI. ABAY, TEDAV\u0130 UMUTLARI T\u00dcKENEN VE YATA\u011eA BA\u011eIMLI HALDE YA\u015eAMAYA BA\u015eLAYAN 10 YA\u015eINDAK\u0130 O\u011eLUNUN ARDINDAN 3 BU\u00c7UK YA\u015eINDAK\u0130 O\u011eLUNUN DA AYNI DURUMA D\u00dc\u015eMEMES\u0130 \u0130\u00c7\u0130N YETK\u0130LERDEN YARDIM BEKL\u0130YOR.<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[22286,6470,1841,11262],"class_list":["post-170281","post","type-post","status-publish","format-standard","hentry","category-genel","tag-babalar","tag-acili","tag-babasi","tag-gununun"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/paKIfm-Iit","_links":{"self":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/170281","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/comments?post=170281"}],"version-history":[{"count":0,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/170281\/revisions"}],"wp:attachment":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media?parent=170281"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/categories?post=170281"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/tags?post=170281"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}