\u00dcnl\u00fc \u015fark\u0131c\u0131 Kelebek \u00c7ocuklar Derne\u011fi Ba\u015fkan\u0131 Fulden Uras, kat\u0131ld\u0131\u011f\u0131 defilede duygusal anlar ya\u015fad\u0131. Kelebek hastas\u0131 \u00e7ocuklar\u0131n yer ald\u0131\u011f\u0131 videoyu izlerken duygu seli ya\u015fayan Uras, \u201cRamazan ay\u0131nda \u00e7ekilen bu videoyu izledi\u011fimde hep duygulan\u0131yorum, \u00e7ok etkileniyorum ve g\u00f6zya\u015flar\u0131m\u0131 tutam\u0131yorum\u201d dedi.<\/p>\n
Mu\u011fla\u2019n\u0131n Marmaris il\u00e7esinde kelebek hastas\u0131 \u00e7ocuklar yarar\u0131na defile d\u00fczenlendi. Defilede modac\u0131 Y\u0131ld\u0131r\u0131m Mayruk ile Can \u00c7apar\u2019\u0131n 2019 yaz koleksiyonlar\u0131 tan\u0131t\u0131ld\u0131. Siteler Mahallesi\u2019ndeki bir otelde d\u00fczenlenen defileye Kelebek \u00c7ocuklar Derne\u011fi Ba\u015fkan\u0131 da olan \u00fcnl\u00fc sanat\u00e7\u0131 Fulden Uras\u2019ta kat\u0131ld\u0131. Uras, kelebek hastas\u0131 \u00e7ocuklar\u0131n yer ald\u0131\u011f\u0131 videoyu izlerken duygu dolu anlar ya\u015fad\u0131.<\/p>\n
Defilede bir konu\u015fma yapan Fulden Uras, \u00f6mr\u00fc yetti\u011fince kelebek hastas\u0131 \u00e7ocuklar i\u00e7in m\u00fccadele etmeye devam edece\u011fini belirterek, \u201cRamazan ay\u0131nda \u00e7ekilen bu videoyu izledi\u011fimde hep duygulan\u0131yorum, \u00e7ok etkileniyorum ve g\u00f6zya\u015flar\u0131m\u0131 tutam\u0131yorum. Kelebek \u00e7ocuklar, videoda g\u00f6rd\u00fckleriniz, g\u00f6rmeye dayanabilece\u011finiz \u00e7ocuklar. D\u00fcnyan\u0131n bir\u00e7ok \u00fclkesinde hi\u00e7bir doktor bu konuda uzmanl\u0131k yapmam\u0131\u015f. Hastal\u0131kla ilgili daha yeni yeni bir \u015feyler, ara\u015ft\u0131rmalar yap\u0131l\u0131yor. Genetik bir hastal\u0131k, \u00fclkemizde de akraba evlili\u011fi \u00e7ok oldu\u011fu i\u00e7in derne\u011fimize ula\u015fm\u0131\u015f 587 \u00e7ocu\u011fumuz var. 587 \u00e7ocu\u011fumuza biz her hafta kremleri, yap\u0131\u015fmayan sarg\u0131 bezleri g\u00fcc\u00fcm\u00fcz yetti\u011fince yollamaya \u00e7al\u0131\u015f\u0131yoruz. Anneannemi ben \u015fekere ba\u011fl\u0131 \u00e7ok a\u011f\u0131r yaralar ve kangrenle kaybettim. Ondan bir sene sonra da annemi kaybettim. Annem onlar\u0131n anneannesiydi, ben onlar\u0131n ablas\u0131y\u0131m. Allah bana nefes verdik\u00e7e, giden b\u00fcy\u00fcklerim i\u00e7in, onlar\u0131n defterleri hep a\u00e7\u0131k olsun diye ben bu \u00e7ocuklar\u0131n yan\u0131nda olmaya devam edece\u011fim. Biz birlikte g\u00fc\u00e7l\u00fcy\u00fcz, biz birlikte o \u00e7ocuklar\u0131n kanatlar\u0131na dokunabiliriz. Bizim \u00e7ocuklar\u0131n \u00e7ekti\u011fi \u00e7ok ciddi a\u00e7\u0131k yaralar\u0131 var. En ufak bir enfeksiyonda kaybetti\u011fimiz \u00e7ocuklar\u0131m\u0131z var. Siz burada \u00fc\u00e7 tanesini g\u00f6rd\u00fcn\u00fcz, biz ge\u00e7en sene 17 \u00e7ocu\u011fumuzu kaybettik. Bu \u00e7ocuklar\u0131n hepsine ben dokunuyorum, hepsini kuca\u011f\u0131ma al\u0131yorum. Her birinde korkun\u00e7 bir ac\u0131 ya\u015f\u0131yorum. Ama Allah kullar\u0131na dayanabilecekleri kadar ac\u0131 verirmi\u015f. Rabbime \u015f\u00fck\u00fcrler olsun, beni de b\u00f6yle bir imtihana tabi tuttu. Ben \u00e7ok mutluyum onlarla. \u00d6mr\u00fcm yettik\u00e7e onlar i\u00e7in ko\u015fmaya, m\u00fccadele etmeye siz dostlarla birlikte devam\u201d dedi.<\/p>\n","protected":false},"excerpt":{"rendered":"
\u00dcNL\u00dc \u015eARKICI KELEBEK \u00c7OCUKLAR DERNE\u011e\u0130 BA\u015eKANI FULDEN URAS, KATILDI\u011eI DEF\u0130LEDE DUYGUSAL ANLAR YA\u015eADI. KELEBEK HASTASI \u00c7OCUKLARIN YER ALDI\u011eI V\u0130DEOYU \u0130ZLERKEN DUYGU SEL\u0130 YA\u015eAYAN URAS, \u201cRAMAZAN AYINDA \u00c7EK\u0130LEN BU V\u0130DEOYU \u0130ZLED\u0130\u011e\u0130MDE HEP DUYGULANIYORUM, \u00c7OK ETK\u0130LEN\u0130YORUM VE G\u00d6ZYA\u015eLARIMI TUTAMIYORUM\u201d DED\u0130.<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"jetpack_post_was_ever_published":false},"categories":[1],"tags":[10060,3649,41128,26542,5590,41129],"class_list":["post-170581","post","type-post","status-publish","format-standard","hentry","category-genel","tag-anlari","tag-duygusal","tag-fulden","tag-sarkici","tag-unlu","tag-urasin"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/paKIfm-Inj","_links":{"self":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/170581","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/comments?post=170581"}],"version-history":[{"count":0,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/170581\/revisions"}],"wp:attachment":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media?parent=170581"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/categories?post=170581"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/tags?post=170581"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}