Antalya\u2019da juvenil miyelomonositik l\u00f6semi (JMML) te\u015fhisi konulan ve annesinden nakledilen yar\u0131 uyumlu ilik tutmad\u0131\u011f\u0131 i\u00e7in babas\u0131n\u0131n ili\u011fi nakledilen 4 ya\u015f\u0131ndaki \u00d6yk\u00fc Arin\u2019in nakil oldu\u011fu hastanede tedavi ve kontrolleri s\u00fcr\u00fcyor. Anne Eylem \u015een Yaz\u0131c\u0131, \u00d6yk\u00fc\u2019n\u00fcn g\u00fcnd\u00fczleri ev iznine \u00e7\u0131kt\u0131\u011f\u0131n\u0131 ve k\u0131z\u0131n\u0131n geceyi hastanede ge\u00e7irmek i\u00e7in geri d\u00f6n\u00fc\u015f yolunda kendisine \u2018B\u00fct\u00fcn \u00e7ocuklar eve gitmi\u015f. Ben niye hastaneye gidiyorum\u2019 \u015feklinde soru sordu\u011funu s\u00f6yledi.<\/p>\n
Ge\u00e7en y\u0131l\u0131n Kas\u0131m ay\u0131nda JMML te\u015fhisi koyulan ve tedavisi i\u00e7in Antalya\u2019ya getirilen \u00d6yk\u00fc Arin\u2019e \u00f6nce annesi Eylem \u015een Yaz\u0131c\u0131\u2019dan ilik nakli yap\u0131lm\u0131\u015f ancak uyum sa\u011flanamay\u0131nca babas\u0131 \u00c7a\u011fda\u015f Yaz\u0131c\u0131\u2019dan yakla\u015f\u0131k bir ay \u00f6nce yar\u0131 uyumlu k\u00f6k h\u00fccre nakledilmi\u015fti. Babadan yap\u0131lan k\u00f6k h\u00fccrenin kimerizm oran\u0131nda y\u00fczde 98.5 ba\u015far\u0131 sa\u011flad\u0131\u011f\u0131n\u0131n a\u00e7\u0131klanmas\u0131n\u0131n ard\u0131ndan aile b\u00fcy\u00fck sevin\u00e7 ya\u015farken, ili\u011fin tutabilmesi i\u00e7in de bekleme s\u00fcrecine ge\u00e7ildi. Bir yandan naklin ger\u00e7ekle\u015fti\u011fi hastanede tedavisi devam eden \u00d6yk\u00fc Arin\u2019in annesi Eylem \u015een Yaz\u0131c\u0131, k\u0131z\u0131n\u0131n son durumuyla ilgili bilgiler payla\u015ft\u0131.<\/p>\n
\u00d6yk\u00fc\u2019n\u00fcn genel sa\u011fl\u0131k durumunun iyi oldu\u011funu belirten Yaz\u0131c\u0131, daha \u00f6nce kendisinden yap\u0131lan ilik naklinin y\u00fczde 98 oran\u0131nda uyum sa\u011flad\u0131\u011f\u0131n\u0131 ancak 15 g\u00fcn sonras\u0131 yap\u0131lan testlerde oran\u0131n a\u015fa\u011f\u0131ya do\u011fru d\u00fc\u015ft\u00fc\u011f\u00fcne dikkat \u00e7ekerek, babadan yap\u0131lan nakil sonras\u0131 bu testlerin periyodik olarak devam edece\u011fini bildirdi.<\/p>\n
\u201cKendi ili\u011fine d\u00f6nme riski s\u00fcr\u00fcyor\u201d<\/p>\n
Hen\u00fcz hastaneden taburcu olmad\u0131klar\u0131n\u0131 ve \u00d6yk\u00fc\u2019n\u00fcn kontrollerinin devam edece\u011fini aktaran Yaz\u0131c\u0131, \u015funlar\u0131 s\u00f6yledi:<\/p>\n
\u201cGenel durumu iyi. Bir iki ufak tefek s\u0131k\u0131nt\u0131s\u0131 oluyor ama onlar tolere edilebilir \u015feyler. \u00d6\u011flen saatlerine kadar hastanede ila\u00e7 al\u0131yor, \u00f6\u011fleden sonra eve izinli g\u00f6nderiliyor. Ak\u015fam da hastaneye geri d\u00f6n\u00fcyoruz. Zaman\u0131n\u0131n bir k\u0131sm\u0131n\u0131 evde, bir k\u0131sm\u0131n\u0131 hastanede ge\u00e7iriyor. Gece hastanede kal\u0131yoruz. Enfeksiyonlardan uzak durmas\u0131 gerekiyor. 2 kez b\u00fct\u00fcn ili\u011fini s\u0131f\u0131rlayacak \u015fekilde a\u011f\u0131r kemoterapi ald\u0131. O y\u00fczden onun ba\u011f\u0131\u015f\u0131kl\u0131\u011f\u0131 \u015fu anda s\u0131f\u0131r ve enfeksiyondan uzak olmas\u0131 gerekiyor. Dolay\u0131s\u0131yla hastanedeki steril ko\u015fullar\u0131 evde de olu\u015fturmaya \u00e7al\u0131\u015f\u0131yoruz. Su birikintilerinin oldu\u011fu yerlerden uzak durmas\u0131 gerekiyor. Kulland\u0131\u011f\u0131 ila\u00e7 havale riski ta\u015f\u0131d\u0131\u011f\u0131 i\u00e7in hastaneden \u00e7ok uzak bir mesafeye gitme izni yok.\u201d<\/p>\n
K\u0131z\u0131n\u0131n ilik sava\u015f\u0131yla halen m\u00fccadele etti\u011finin alt\u0131n\u0131 \u00e7izen Eylem \u015een Yaz\u0131c\u0131, \u201cKendi ili\u011fine d\u00f6nme riski s\u00fcr\u00fcyor. Hastal\u0131\u011f\u0131n geri d\u00f6nme riski var. En kritik s\u00fcre 6 ila 8 ay hatta 1 y\u0131l. Sonraki 2 y\u0131l da \u00f6nemli deniliyor. Bu s\u00fcreyi atlatt\u0131ktan sonra risk biraz d\u00fc\u015fm\u00fc\u015f oluyor\u201d dedi.<\/p>\n
\u201cB\u00fct\u00fcn \u00e7ocuklar eve gitmi\u015f\u201d<\/p>\n
Doktorlar\u0131n g\u00fcnd\u00fczleri ev izni verdi\u011fini ancak tedavinin devam\u0131 i\u00e7in ak\u015fam hastaneye d\u00f6n\u00fcp geceyi orada ge\u00e7irdiklerini belirten Yaz\u0131c\u0131, \u201cHastaneye d\u00f6nmek istemiyor. Ak\u015fam hastaneye d\u00f6nerken, \u2018B\u00fct\u00fcn \u00e7ocuklar eve gitmi\u015f, ben niye hastaneye gidiyorum\u2019, \u2018ne zaman evde uyuyaca\u011f\u0131m art\u0131k\u2019 diye sorular soruyor. Evde olmaktan \u00e7ok mutlu ve \u00f6zlemi\u015f. \u0130lk zamanlar hastaneye d\u00f6nd\u00fc\u011f\u00fcnde daha \u00e7ok problem oluyordu, \u015fimdi art\u0131k buna da al\u0131\u015ft\u0131\u201d diye konu\u015ftu.<\/p>\n
Yaz\u0131c\u0131, kemoterapi sonras\u0131 sa\u00e7lar\u0131n\u0131 kaybeden k\u0131z\u0131n\u0131n sa\u00e7lar\u0131n\u0131n tekrar \u00e7\u0131kmaya ba\u015flad\u0131\u011f\u0131n\u0131 ve bu y\u00fczden \u00d6yk\u00fc\u2019n\u00fcn mutlu oldu\u011funu dile getirdi.<\/p>\n
\u201cYar\u0131 uyumlu nakil son \u00e7aremizdi\u201d<\/p>\n
Son olarak don\u00f6r olma \u00e7a\u011fr\u0131s\u0131n\u0131 yineleyen Yaz\u0131c\u0131, \u201cY\u00fczde 98.5 kemarizmin tutmu\u015f olmas\u0131, baban\u0131n y\u00fczde 98.5 uyumlu oldu\u011fu anlam\u0131na gelmiyor. Baba 10\/5 uyumlu ve bu nakil bizim son \u00e7aremizdi. E\u011fer akraba d\u0131\u015f\u0131 10\/10 ya da 10\/9 uyumlu birisi bulunabilseydi o tercih edilecekti ama bulamad\u0131k. Dolay\u0131s\u0131yla kampanyay\u0131 bu y\u00fczden yapt\u0131k. Sadece \u00d6yk\u00fc Arin i\u00e7in de\u011fil b\u00fct\u00fcn \u00d6yk\u00fc Arin\u2019ler i\u00e7in yapt\u0131k. Hala nakil bekleyen \u00e7ok say\u0131da \u00e7ocuk var. \u00d6yk\u00fc Arin\u2019in de d\u00fc\u015f\u00fck bir ihtimal de olsa yeniden ihtiyac\u0131 olabilir. O y\u00fczden, \u2018don\u00f6r olun, umut olsun ve asla vazge\u00e7meyin\u2019 demeye devam ediyoruz\u201d ifadelerini kulland\u0131.<\/p>\n","protected":false},"excerpt":{"rendered":"
ANTALYA’DA JUVEN\u0130L M\u0130YELOMONOS\u0130T\u0130K L\u00d6SEM\u0130 (JMML) TE\u015eH\u0130S\u0130 KONULAN VE ANNES\u0130NDEN NAKLED\u0130LEN YARI UYUMLU \u0130L\u0130K TUTMADI\u011eI \u0130\u00c7\u0130N BABASININ \u0130L\u0130\u011e\u0130 NAKLED\u0130LEN 4 YA\u015eINDAK\u0130 \u00d6YK\u00dc AR\u0130N\u2019\u0130N NAK\u0130L OLDU\u011eU HASTANEDE TEDAV\u0130 VE KONTROLLER\u0130 S\u00dcR\u00dcYOR. ANNE EYLEM \u015eEN YAZICI, \u00d6YK\u00dc\u2019N\u00dcN G\u00dcND\u00dcZLER\u0130 EV \u0130ZN\u0130NE \u00c7IKTI\u011eINI VE KIZININ GECEY\u0130 HASTANEDE GE\u00c7\u0130RMEK \u0130\u00c7\u0130N GER\u0130 D\u00d6N\u00dc\u015e YOLUNDA KEND\u0130S\u0130NE \u2018B\u00dcT\u00dcN \u00c7OCUKLAR EVE G\u0130TM\u0130\u015e. BEN N\u0130YE HASTANEYE G\u0130D\u0130YORUM\u2019 \u015eEKL\u0130NDE SORU SORDU\u011eUNU S\u00d6YLED\u0130.<\/p>\n","protected":false},"author":1,"featured_media":177650,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[6283,38493,3195,1866,252,5243,15924,43484,2097,14883,1520,5754,9997],"class_list":["post-177649","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-genel","tag-annesine","tag-arinden","tag-ben","tag-butun","tag-cocuklar","tag-eve","tag-gidiyorum","tag-gitmis","tag-hastaneye","tag-niye","tag-oyku","tag-soru","tag-zor"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/i0.wp.com\/www.tvturk.com\/wp-content\/uploads\/2019\/07\/oyku-arinden-annesine-zor-soru-butun-cocuklar-eve-gitmis-ben-niye-hastaneye-gidiyorum_593a8a3.jpg?fit=1000%2C750","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/paKIfm-Kdj","_links":{"self":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/177649","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/comments?post=177649"}],"version-history":[{"count":0,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/177649\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media\/177650"}],"wp:attachment":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media?parent=177649"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/categories?post=177649"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/tags?post=177649"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}