Antalya\u2019da ya\u015fayan do\u011fu\u015ftan \u2019kelebek\u2019 hastas\u0131 Suriye uyruklu 17 ya\u015f\u0131ndaki Aladdin Elhrbe hayata tutunmaya \u00e7al\u0131\u015f\u0131yor. Literat\u00fcrde kesin bir tedavisi bulunmayan ve v\u00fccudunun b\u00fcy\u00fck bir b\u00f6l\u00fcm\u00fc yara i\u00e7inde bulunan Aladdin\u2019in hastal\u0131\u011f\u0131na ra\u011fmen ay y\u0131ld\u0131zl\u0131 ti\u015f\u00f6rt\u00fcyle g\u00fcl\u00fcmsemesini y\u00fcz\u00fcnden eksik etmedi\u011fi g\u00f6r\u00fcld\u00fc.<\/p>\n
Suriye\u2019nin Halep kentinde ya\u015fayan Halef-\u015eemse Elhrbe \u00e7ifti, ya\u015fanmaya ba\u015flanan i\u00e7 sava\u015f\u0131n ard\u0131ndan \u00fclkelerini terk etmek zorunda kald\u0131. \u0130lk olarak 5 y\u0131l \u00f6nce Hatay\u2019a gelen aile daha sonra iki \u00e7ocu\u011funun \u00e7al\u0131\u015ft\u0131\u011f\u0131 Antalya\u2019n\u0131n Kepez il\u00e7esinde m\u00fcstakil bir eve yerle\u015fti. 7 \u00e7ocu\u011fu bulunan Halef Elhrbe, ailesini g\u00fcndelik i\u015fler ve \u00e7e\u015fitli yevmiyeli i\u015flerle ge\u00e7indirmeye ba\u015flad\u0131. Ailenin en b\u00fcy\u00fck sorunu ise do\u011fu\u015ftan kelebek hastal\u0131\u011f\u0131 olan 17 ya\u015f\u0131ndaki \u00e7ocuklar\u0131 Aladdin Elhrbe\u2019nin ila\u00e7lar\u0131na ula\u015famamak. Sava\u015f nedeniyle Aladdin, bebekli\u011finden itibaren v\u00fccudunda olu\u015fmaya ba\u015flayan yaralar ilerlemeye ba\u015flad\u0131. Cildi kelebek kanatlar\u0131 gibi hassas ve k\u0131r\u0131lgan oldu\u011fu i\u00e7in “kelebek \u00e7ocuk” diye bilinen Aladdin\u2019in 17 ya\u015f\u0131na geldi\u011finde v\u00fccudunun yakla\u015f\u0131k y\u00fczde 80\u2019i a\u00e7\u0131k yara g\u00f6r\u00fcn\u00fcm\u00fcn\u00fc ald\u0131. Kal\u0131tsal olmas\u0131 nedeniyle \u00f6m\u00fcr boyu devam eden hastal\u0131kta en b\u00fcy\u00fck tedavi ise iltihap ve ka\u015f\u0131nt\u0131 giderici ila\u00e7lar\u0131n kullan\u0131lmas\u0131.<\/p>\n
“T\u00fcrkiye ti\u015f\u00f6rt\u00fcn\u00fc \u00e7\u0131karm\u0131yor”<\/p>\n
Ailenin \u00e7ekti\u011fi ila\u00e7 s\u0131k\u0131nt\u0131s\u0131, Antalya Yard\u0131mla\u015fma Platformu\u2019nun \u00f6nc\u00fcl\u00fc\u011f\u00fcnde yurt d\u0131\u015f\u0131ndan getirilmesiyle son buldu. A\u011fr\u0131lar\u0131 bir nebze olsun azalan Aladdin, eline takt\u0131\u011f\u0131 eldivenlerle yere bas\u0131p, s\u00fcr\u00fcklenerek y\u00fcr\u00fcyebiliyor. \u00dczerinde ay y\u0131ld\u0131zl\u0131 T\u00fcrkiye ti\u015f\u00f6rt\u00fc bulunan Aladdin\u2019in v\u00fccudundaki t\u00fcm yaralara ra\u011fmen g\u00fcl\u00fcmsedi\u011fi ve hastal\u0131\u011f\u0131na kar\u015f\u0131 direndi\u011fi g\u00f6r\u00fcld\u00fc. \u0130ki odal\u0131 m\u00fcstakil evde ya\u015fayan ailenin T\u00fcrk\u00e7e konu\u015fabilen \u00e7ocuklar\u0131ndan Abd\u00fclvahap Elhrbe, a\u011fabeyinin durumuna \u00e7ok \u00fcz\u00fcld\u00fcklerini s\u00f6yledi.<\/p>\n
“Sava\u015f olunca ilaca ula\u015famad\u0131k”<\/p>\n
7 karde\u015f olduklar\u0131n\u0131 ve Suriye\u2019de sava\u015fta evlerinin y\u0131k\u0131lmas\u0131n\u0131n ard\u0131ndan T\u00fcrkiye\u2019ye geldiklerini anlatan Abd\u00fclvahap, \u201cAntalya\u2019da a\u011fabeylerim \u00e7al\u0131\u015f\u0131yordu, Hatay\u2019dan sonra buraya geldik. Ama en b\u00fcy\u00fck \u00fcz\u00fcnt\u00fcm\u00fcz a\u011fabeyim. A\u011fabeyim kelebek hastas\u0131. A\u011fabeyimin tedavi edilmesini, iyile\u015fmesini \u00e7ok istiyorum. \u00dclkemde a\u011fabeyimle azda olsa oynayabildim. Ama sava\u015f olunca ila\u00e7 kalmad\u0131 a\u011fabeyimin hastal\u0131\u011f\u0131 ilerledi” diye konu\u015ftu.<\/p>\n
“\u00dclkemize d\u00f6nmek isteriz”<\/p>\n
T\u00fcrkiye\u2019deki hastanelerde a\u011fabeyime \u00e7ok iyi bak\u0131ld\u0131\u011f\u0131n\u0131 dile getiren Abd\u00fclvahap, \u201cA\u011fabeyime \u00e7ok iyi bakt\u0131lar. Ama \u00fclkemizde sava\u015f biterse d\u00f6nmek istiyoruz. \u00c7\u00fcnk\u00fc oras\u0131 bizim topraklar\u0131m\u0131z” dedi.<\/p>\n
Hastal\u0131k hakk\u0131nda<\/p>\n
Kelebek hastal\u0131\u011f\u0131 ya da \u2019Epidermolizis B\u00fclloza\u2019, cildin \u00e7ok kolay bir \u015fekilde kabarmas\u0131na ve a\u015f\u0131nmas\u0131na neden olan bir grup genetik deri hastal\u0131\u011f\u0131 olarak biliniyor.<\/p>\n","protected":false},"excerpt":{"rendered":"
ANTALYA\u2019DA YA\u015eAYAN DO\u011eU\u015eTAN ‘KELEBEK’ HASTASI SUR\u0130YE UYRUKLU 17 YA\u015eINDAK\u0130 ALADD\u0130N ELHRBE HAYATA TUTUNMAYA \u00c7ALI\u015eIYOR. L\u0130TERAT\u00dcRDE KES\u0130N B\u0130R TEDAV\u0130S\u0130 BULUNMAYAN VE V\u00dcCUDUNUN B\u00dcY\u00dcK B\u0130R B\u00d6L\u00dcM\u00dc YARA \u0130\u00c7\u0130NDE BULUNAN ALADD\u0130N’\u0130N HASTALI\u011eINA RA\u011eMEN AY YILDIZLI T\u0130\u015e\u00d6RT\u00dcYLE G\u00dcL\u00dcMSEMES\u0130N\u0130 Y\u00dcZ\u00dcNDEN EKS\u0130K ETMED\u0130\u011e\u0130 G\u00d6R\u00dcLD\u00dc.<\/p>\n","protected":false},"author":1,"featured_media":179933,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[44253,2247,11633,13331,1036,453],"class_list":["post-179932","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-genel","tag-aladdinin","tag-aski","tag-hastasi","tag-kelebek","tag-suriyeli","tag-turkiye"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/i0.wp.com\/www.tvturk.com\/wp-content\/uploads\/2019\/07\/suriyeli-kelebek-hastasi-aladdinin-turkiye-aski_7ee3d8e.jpg?fit=1000%2C666","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/paKIfm-KO8","_links":{"self":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/179932","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/comments?post=179932"}],"version-history":[{"count":0,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/179932\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media\/179933"}],"wp:attachment":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media?parent=179932"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/categories?post=179932"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/tags?post=179932"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}