Dicle \u00dcniversite \u00c7ocuk G\u00f6\u011f\u00fcs Hastal\u0131klar\u0131 Anabilim Dal\u0131 \u00d6\u011fretim \u00dcyesi Do\u00e7. Dr. Velat \u015een, kistik fibrozis hastal\u0131\u011f\u0131n\u0131n akci\u011ferleri ve sindirim sistemini etkileyen genetik bir hastal\u0131k oldu\u011funu belirterek, b\u00fcy\u00fcme, geli\u015fme gerili\u011fi ve akci\u011fer enfeksiyonlar\u0131 olan \u00e7ocuklar\u0131n mutlaka Kistik Fibrozis Merkezi\u2019ne y\u00f6nlendirilmesi gerekti\u011fini s\u00f6yledi.<\/p>\n
Kistik fibrozis hastal\u0131\u011f\u0131 ile ilgili a\u00e7\u0131klamalarda bulunan Do\u00e7. Dr. Velat \u015een, 8 Eyl\u00fcl\u2019\u00fcn D\u00fcnya Sa\u011fl\u0131k \u00d6rg\u00fct\u00fc karar\u0131yla Kistik Fibrozis G\u00fcn\u00fc olarak belirlendi\u011fini s\u00f6yledi. Do\u00e7. Dr. \u015een, “Hastal\u0131k, solunum yollar\u0131nda \u00f6zellikle akci\u011ferlerimiz ba\u015fta olmak \u00fczere birden \u00e7ok organ\u0131 etkilemektedir. Hastal\u0131k multi sistemik oldu\u011fu i\u00e7in akci\u011ferle beraber \u00f6zellikle pankreas\u0131 da etkilemektedir. Tan\u0131 \u00f6zellikle do\u011fduktan itibaren uzayan sar\u0131l\u0131kla, ilk kakas\u0131n\u0131 ge\u00e7 yapmakla bulgu verebiliyorlar. Bu \u00e7ocuklar\u0131m\u0131zda bir geli\u015fme gerili\u011fi s\u00f6z konusu oluyor. Bebekler do\u011fduktan sonraki d\u00f6nemde kilo almada duraksama, b\u00fcy\u00fcme geli\u015fme gibi \u015fikayetleri olabiliyor. Bu hastal\u0131kta \u00f6zellikle ciltte terle ilgili sorunlar\u0131m\u0131z oluyor. Bu \u00e7ocuklar\u0131n terleri \u00e7ok tuzlu oluyor. V\u00fccutlar\u0131nda ciddi manada bir tuz kayb\u0131 oluyor. Hastal\u0131\u011f\u0131n tan\u0131s\u0131 \u00e7ok \u00f6nemli. \u00c7\u00fcnk\u00fc ne kadar erken tan\u0131n\u0131rsa erken tedaviyle, uygun tedaviyle ya\u015fam s\u00fcresi ve kalitesi belirgin olarak art\u0131yor” dedi.<\/p>\n
“\u00dclkemizde tan\u0131 konulan hasta say\u0131s\u0131 3 ila 4 bin aras\u0131nda”<\/p>\n
Hastal\u0131\u011f\u0131n tan\u0131s\u0131 sonras\u0131 ailelerle birlikte hareket ettiklerini kaydeden Do\u00e7. Dr. Velat \u015een, s\u00f6zlerini \u015f\u00f6yle s\u00fcrd\u00fcrd\u00fc:<\/p>\n
\u201cSadece \u00e7ocuk g\u00f6\u011f\u00fcs hastal\u0131klar\u0131 de\u011fil, bununla beraber gastroenteroloji, endokyonoloji, fizyoterapi doktorlar\u0131m\u0131z ve enfeksiyon doktorlar\u0131m\u0131zla beraber hareket ediyoruz. T\u00fcm d\u00fcnyada on binlerce hasta oldu\u011fu tahmin ediliyor. \u00dclkemizde de en az 20 bin civar\u0131ndan hasta oldu\u011fu d\u00fc\u015f\u00fcn\u00fcl\u00fcyor. Ancak hen\u00fcz tan\u0131 alan hasta say\u0131s\u0131 3 bin ile 4 bin aras\u0131nda. Demek ki, hastalar\u0131n \u00f6nemli bir k\u0131sm\u0131 tan\u0131 konamam\u0131\u015f. Bizim burada da bakt\u0131\u011f\u0131m\u0131z zaman akraba evlili\u011finde dolay\u0131 kistik fibrozisi biraz daha fazla g\u00f6rmekteyiz. Kistik fibrozis genetik bir hastal\u0131kt\u0131r. Anne veya baba ta\u015f\u0131y\u0131c\u0131 oldu\u011fu zaman hastal\u0131k ortaya \u00e7\u0131k\u0131yor. Bu nedenle bizim b\u00f6lgemizde bu hastal\u0131\u011f\u0131 biraz daha s\u0131k g\u00f6r\u00fcyoruz. T\u00fcm d\u00fcnyada 8 Eyl\u00fcl D\u00fcnya Kistik Fibrozis G\u00fcn\u00fc olarak kullan\u0131lmakta. Bir de b\u00f6lgemizde Kistik Fibrozis Merkezi olarak bir fark\u0131ndal\u0131k olu\u015fturarak hem aile bilgilendirme toplant\u0131s\u0131 hem hekim bilgilendirme toplant\u0131lar\u0131 yap\u0131yoruz.\u201d<\/p>\n","protected":false},"excerpt":{"rendered":"
D\u0130CLE \u00dcN\u0130VERS\u0130TE \u00c7OCUK G\u00d6\u011e\u00dcS HASTALIKLARI ANA B\u0130L\u0130M DALI \u00d6\u011eRET\u0130M \u00dcYES\u0130 DO\u00c7. DR. VELAT \u015eEN, K\u0130ST\u0130K F\u0130BROZ\u0130S HASTALI\u011eIN AKC\u0130\u011eERLER\u0130 VE S\u0130ND\u0130R\u0130M S\u0130STEM\u0130N\u0130 ETK\u0130LEYEN GENET\u0130K B\u0130R HASTALIK OLDU\u011eUNU BEL\u0130RTEREK, B\u00dcY\u00dcME GEL\u0130\u015eME GER\u0130L\u0130\u011e\u0130 VE AKC\u0130\u011eER ENFEKS\u0130YONLARI OLAN \u00c7OCUKLARIN MUTLAKA K\u0130ST\u0130K F\u0130BROZ\u0130S MERKEZ\u0130\u2019NE Y\u00d6NLEND\u0130R\u0130LMES\u0130 GEREKT\u0130\u011e\u0130N\u0130 S\u00d6YLED\u0130.<\/p>\n","protected":false},"author":1,"featured_media":200676,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[50505,50504,914,24329],"class_list":["post-200675","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-genel","tag-fibrozis","tag-kistik","tag-uyarisi","tag-uzmanindan"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/i0.wp.com\/www.tvturk.com\/wp-content\/uploads\/2019\/09\/uzmanindan-kistik-fibrozis-uyarisi_0e59856.jpg?fit=1000%2C666","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/paKIfm-QcH","_links":{"self":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/200675","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/comments?post=200675"}],"version-history":[{"count":0,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/200675\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media\/200676"}],"wp:attachment":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media?parent=200675"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/categories?post=200675"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/tags?post=200675"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}