Beyincik erimesi olan 4 ya\u015f\u0131ndaki minik Aysima i\u00e7in Antalya\u2019da Valilik onayl\u0131 yard\u0131m kampanyas\u0131 ba\u015flat\u0131ld\u0131. Anne \u015eule Topal, “\u0130lac\u0131 var ama yurt d\u0131\u015f\u0131nda ve \u00e7ok maliyetli, biz kar\u015f\u0131layacak g\u00fc\u00e7te de\u011filiz. Aysima e\u011fer ila\u00e7lar\u0131n\u0131 almazsa b\u00fct\u00fcn ya\u015famsal fonksiyonlar\u0131n\u0131 kaybedecek. K\u0131z\u0131m ya\u015fas\u0131n, elimizden kaymas\u0131n istiyorum” dedi.<\/p>\n
Antalya\u2019da ya\u015fayan \u015eule ve Sinan Topal \u00e7iftinin 4 ya\u015f\u0131ndaki \u00e7ocu\u011fu Aysima\u2019ya n\u00f6ronal seroid lipofusinozis (NCL) Tip 2 yani halk aras\u0131nda “beyincik erimesi” tan\u0131s\u0131 konuldu. Bu hastal\u0131k sonucu kas tonusunda art\u0131\u015f, g\u00f6rme problemleri, konu\u015fma sorunlar\u0131, n\u00f6betler, bunama gibi \u00e7ok \u00e7e\u015fitli n\u00f6rolojik belirtilere sebep oluyor. Hastal\u0131\u011f\u0131n ilerlemesini durduran ila\u00e7 ise olduk\u00e7a pahal\u0131 ve T\u00fcrkiye\u2019de hen\u00fcz yok. Ayl\u0131k 56 bin euro olan ila\u00e7, ge\u00e7en y\u0131l nisan ay\u0131nda Sa\u011fl\u0131k Bakanl\u0131\u011f\u0131n\u0131n yurt d\u0131\u015f\u0131 ila\u00e7 listesine eklendi. Aysima ile birlikte 7 \u00e7ocu\u011fa bakanl\u0131k bu ilac\u0131n al\u0131nmas\u0131na y\u00f6nelik onay verdi. Cumhurba\u015fkan\u0131 Recep Tayyip Erdo\u011fan da bu hastal\u0131\u011fa yakalanan \u00e7ocuklardan biri i\u00e7in ila\u00e7lar\u0131n\u0131 hemen temin edilmesi konusunda talimat verdi. K\u0131z\u0131n\u0131n ya\u015famsal fonksiyonlar\u0131n\u0131 kaybetmesini istemeyen Topal \u00e7ifti, hay\u0131rseverlerden k\u0131z\u0131 i\u00e7in yard\u0131m eli bekliyor.<\/p>\n
Valilik onayl\u0131 resmi kampanya ba\u015flat\u0131ld\u0131<\/p>\n
18 ayd\u0131r bu hastal\u0131kla m\u00fccadele eden minik Aysima\u2019n\u0131n y\u00fcr\u00fcmesinde de\u011fi\u015fmeler ba\u015flad\u0131, yeme\u011fini yiyemez hale geldi. \u00d6nceden \u2019baba i\u015fe gitti\u2019 gibi c\u00fcmleler kuran Aysima art\u0131k konu\u015fam\u0131yor. “K\u0131z\u0131m ya\u015fas\u0131n istiyorum” diyen g\u00f6z\u00fc ya\u015fl\u0131 anne Topal, “D\u00fcnya ba\u015f\u0131m\u0131za y\u0131k\u0131ld\u0131. Elimizden kaymas\u0131n istiyorum. Onunla elinden tutup d\u0131\u015far\u0131da rahat rahat y\u00fcr\u00fcmek istiyorum. Okullar a\u00e7\u0131ld\u0131 ve ben \u00fcz\u00fcl\u00fcyorum” dedi.<\/p>\n
\u0130la\u00e7 masraflar\u0131 kar\u015f\u0131lan\u0131rsa minik Aysima\u2019ya Hacettepe Hastanesinde \u015fant tak\u0131lacak ve ila\u00e7la birlikte hastal\u0131\u011f\u0131 durdurulacak. Konuyla ilgilenen Antalya Valisi M\u00fcnir Karalo\u011flu, Aysima i\u00e7in yard\u0131m kampanyas\u0131 ba\u015flat\u0131lmas\u0131na onay verdi. Valilikten resmi onayl\u0131 kampanya kapsam\u0131nda yard\u0131mseverlerin minik Aysima i\u00e7in umut olmas\u0131 bekleniyor.<\/p>\n","protected":false},"excerpt":{"rendered":"
BEY\u0130NC\u0130K ER\u0130MES\u0130 OLAN 4 YA\u015eINDAK\u0130 M\u0130N\u0130K AYS\u0130MA \u0130\u00c7\u0130N ANTALYA’DA VAL\u0130L\u0130K ONAYLI YARDIM KAMPANYASI BA\u015eLATILDI.<\/p>\n","protected":false},"author":1,"featured_media":201358,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[50690,2235,44,4697,1636],"class_list":["post-201357","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-genel","tag-aysima","tag-baslatildi","tag-icin","tag-kampanya","tag-minik"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/i0.wp.com\/www.tvturk.com\/wp-content\/uploads\/2019\/09\/minik-aysima-icin-kampanya-baslatildi_60fb512.jpg?fit=750%2C500","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/paKIfm-QnH","_links":{"self":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/201357","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/comments?post=201357"}],"version-history":[{"count":0,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/201357\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media\/201358"}],"wp:attachment":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media?parent=201357"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/categories?post=201357"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/tags?post=201357"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}