Antalya\u2019da Spinal M\u00fcsk\u00fcler Atrofi (SMA) hastal\u0131\u011f\u0131na yakalanan \u00e7ocuklar\u0131n 5 ya\u015f\u0131na kadar ya\u015fad\u0131\u011f\u0131n\u0131 \u00f6\u011frendikten sonra do\u011fum g\u00fcn\u00fc kutlamak istemeyen 6,5 ya\u015f\u0131ndaki SMA Tip 2 hastas\u0131 Umutcan, Sa\u011fl\u0131k Bakanl\u0131\u011f\u0131n\u0131n ila\u00e7 onay\u0131n\u0131n ard\u0131ndan ald\u0131\u011f\u0131 dozlar sonras\u0131 v\u00fccudunda fiziki geli\u015fmeler ya\u015fand\u0131. Daha \u00f6nce oturmakta zorlanan Umutcan, kulland\u0131\u011f\u0131 3 doz ila\u00e7 sonras\u0131 adeta canland\u0131.<\/p>\n
Antalya\u2019n\u0131n Muratpa\u015fa il\u00e7esinde sa\u011fl\u0131k personeli Rukiye Cop\u2019un 2 \u00e7ocu\u011fundan en k\u00fc\u00e7\u00fc\u011f\u00fc olan 6,5 ya\u015f\u0131ndaki Umutcan K\u0131l\u0131\u00e7\u2019a, 1 ya\u015f\u0131nda kas hastal\u0131\u011f\u0131 olarak da bilinen SMA Tip 2 te\u015fhisi konuldu. Te\u015fhis \u00f6ncesinde 7 aya kadar emekleyebilen hatta erken y\u00fcr\u00fcyece\u011fi d\u00fc\u015f\u00fcn\u00fclen Umutcan\u2019\u0131n, 8. aydan itibaren hareketlerinde k\u0131s\u0131tlanmalar meydana geldi. Bunun \u00fczerine anne Rukiye Cop, hastane hastane gezerek o\u011flunun hastal\u0131\u011f\u0131n\u0131n tespit edilmesi i\u00e7in yo\u011fun gayret sarf etti. O\u011fluna konulan SMA Tip 2 te\u015fhisi sonras\u0131 Rukiye Cop, pes etmeyerek \u00e7ocu\u011funun y\u00fcr\u00fcyebilmesi i\u00e7in fizik terapi merkezlerinde \u00e7aba sarf etti, ancak sonu\u00e7 alamad\u0131.<\/p>\n
Bakanl\u0131k ila\u00e7 onay\u0131 verince do\u011fum g\u00fcn\u00fc kutlad\u0131<\/p>\n
SMA Tip 2 hastalar\u0131n\u0131n 5 ya\u015f\u0131na kadar ya\u015fayabildi\u011fini \u00f6\u011frenen aile, her y\u0131l \u00f6l\u00fcme yakla\u015ft\u0131\u011f\u0131n\u0131 d\u00fc\u015f\u00fcnd\u00fckleri \u00e7ocuklar\u0131n\u0131n anne ile ayn\u0131 tarihte olan do\u011fum g\u00fcn\u00fcn\u00fc hi\u00e7 kutlamad\u0131. Umutcan, Sa\u011fl\u0131k Bakanl\u0131\u011f\u0131n\u0131n kendisine umut olacak ilac\u0131n onaylanmas\u0131n\u0131n ard\u0131ndan ailenin \u00fcmidi tekrar ye\u015ferdi. Anne ve Umutcan\u2019\u0131n do\u011fum tarihi olan 14 \u015eubat, m\u00fcjdeli haberin ard\u0131ndan ailenin ilk do\u011fum g\u00fcn\u00fc oldu. Tuttu\u011fu tak\u0131m olan Fenerbah\u00e7eli pastan\u0131n mumlar\u0131n\u0131 g\u00fc\u00e7l\u00fc bir nefesle \u00fcfleyen Umutcan, 6 ya\u015f\u0131na girdi. Umutcan\u2019\u0131n ilk dile\u011fi ise onay alamayan di\u011fer SMA hastas\u0131 arkada\u015flar\u0131n\u0131n ilac\u0131 alabilmesi oldu.<\/p>\n
Fiziki olarak geli\u015fme kat etti<\/p>\n
\u0130la\u00e7 onay\u0131n\u0131n ard\u0131ndan 22 Mart tarihinde ilac\u0131n ilk dozunu kullanmaya ba\u015flayan Umutcan\u2019da b\u00fcy\u00fck fiziki geli\u015fmeler ya\u015fand\u0131. Daha \u00f6nce oturmakta dahi g\u00fc\u00e7l\u00fck \u00e7eken Umutcan, rahat bir \u015fekilde kendini kontrol ederek oturmaya ba\u015flad\u0131. Kas ve iskelet sisteminde de geli\u015fmeler ya\u015fanan Umutcan, ayaklar\u0131n\u0131 oynatmaya, uza\u011f\u0131na konulan e\u015fyalar\u0131 uzanarak almay\u0131 ba\u015farabildi. \u00d6m\u00fcr boyu kullanmas\u0131 gereken ilac\u0131n etkisini g\u00f6ren Umutcan, art\u0131k do\u011fum g\u00fcn\u00fc kutlamaktan korkmuyor, aksine aya\u011fa kalkabilmek i\u00e7in umudunu y\u00fckseltiyor.<\/p>\n
Umutcan\u2019\u0131n ilk ilac\u0131n\u0131 22 Mart\u2019ta ald\u0131\u011f\u0131n\u0131 belirten anne Rukiye Cop, \u015fuana kadar 3 doz kulland\u0131klar\u0131n\u0131 ve o\u011flunun ilac\u0131 kullanmaya ba\u015flamas\u0131ndan itibaren b\u00fcy\u00fck bir geli\u015fme kat etti\u011fini s\u00f6yledi. Cop, \u201c\u00d6zellikle s\u0131rt\u0131nda kamburu vard\u0131 baya d\u00fczeldi. G\u00f6\u011fs\u00fcndeki \u00e7\u0131k\u0131nt\u0131 a\u015fa\u011f\u0131ya do\u011fru indi. Duru\u015fu ve oturu\u015fu d\u00fczeldi. Kas g\u00fcc\u00fc artt\u0131. \u0130lk 4 doz i\u00e7in zaten onay\u0131m\u0131z\u0131 alm\u0131\u015ft\u0131k. 5\u2019inci doz i\u00e7in fiziksel puanlamaya girecek. 3 puan alabilirse ilac\u0131n\u0131 alabilecek\u201d dedi.<\/p>\n
\u201cHastal\u0131\u011f\u0131 durmu\u015f vaziyette\u201d<\/p>\n
O\u011flunun 5\u2019inci dozdan sonra ilac\u0131 \u00f6m\u00fcr boyu kullanmas\u0131 gerekti\u011fini ifade eden Cop, \u201cGeli\u015fmeler yava\u015f yava\u015f olacak. Biz zaten birden aya\u011fa kalmas\u0131n\u0131 beklemiyoruz. \u015eu an hastal\u0131\u011f\u0131 durmu\u015f vaziyette. Ayaklar\u0131n\u0131 oynatam\u0131yorduk, ac\u0131yordu. \u015eimdi ise \u00e7ok gev\u015fek durumda. Bu geli\u015fimde fizik tedavi ve beslenme de \u00f6nemli\u201d diye konu\u015ftu.<\/p>\n
\u201cUmudu art\u0131k daha b\u00fcy\u00fck\u201d<\/p>\n
Daha \u00f6nce ya\u015f\u0131 ilerledik\u00e7e \u00f6lece\u011fini d\u00fc\u015f\u00fcnd\u00fc\u011f\u00fc i\u00e7in do\u011fum g\u00fcn\u00fc kutlamaktan korkan o\u011flunun art\u0131k korkmad\u0131\u011f\u0131n\u0131 anlatan Cop, \u201cUmutcan\u2019\u0131n umudu art\u0131k daha b\u00fcy\u00fck. Eskisi kadar korkmuyor. Do\u011fum g\u00fcn\u00fc kutlamaya devam edecek\u201d dedi.<\/p>\n
\u201cKendimi \u00e7ok iyi hissediyorum\u201d<\/p>\n
\u0130lac\u0131 kulland\u0131ktan sonra kendini daha iyi hissetti\u011fini s\u00f6yleyen Umutcan ise kendi gibi SMA hastas\u0131 olan karde\u015fleri i\u00e7in ila\u00e7 kriteri konulmamas\u0131 gerekti\u011fini s\u00f6yledi. Umutcan, \u201cBenim makineye ba\u011fl\u0131 karde\u015fim var. Neden onun ilac\u0131n\u0131 kesiyorlar? Bizim ilac\u0131m\u0131z\u0131 versinler. Neden bizim ilac\u0131m\u0131za bu kadar zorluk \u00e7\u0131kart\u0131yorlar. Bu ila\u00e7 \u00e7ok etkili ve ben kendimi \u00e7ok iyi hissediyorum\u201d diye konu\u015ftu.<\/p>\n","protected":false},"excerpt":{"rendered":"
UMUTCAN\u2019IN \u0130LK \u0130LACINI 22 MART\u2019TA ALDI\u011eINI BEL\u0130RTEN ANNE RUK\u0130YE COP, \u015eUANA KADAR 3 DOZ KULLANDIKLARINI VE O\u011eLUNUN \u0130LACI KULLANMAYA BA\u015eLAMASINDAN \u0130T\u0130BAREN B\u00dcY\u00dcK B\u0130R GEL\u0130\u015eME KAT ETT\u0130\u011e\u0130N\u0130 S\u00d6YLED\u0130. COP, \u201c\u00d6ZELL\u0130KLE SIRTINDA KAMBURU VARDI BAYA D\u00dcZELD\u0130. G\u00d6\u011eS\u00dcNDEK\u0130 \u00c7IKINTI A\u015eA\u011eIYA DO\u011eRU \u0130ND\u0130. DURU\u015eU VE OTURU\u015eU D\u00dcZELD\u0130. KAS G\u00dcC\u00dc ARTTI. \u0130LK 4 DOZ \u0130\u00c7\u0130N ZATEN ONAYIMIZI ALMI\u015eTIK. 5\u2019\u0130NC\u0130 DOZ \u0130\u00c7\u0130N F\u0130Z\u0130KSEL PUANLAMAYA G\u0130RECEK. 3 PUAN ALAB\u0130L\u0130RSE \u0130LACINI ALAB\u0130LECEK\u201d DED\u0130.<\/p>\n","protected":false},"author":1,"featured_media":202043,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[50901],"class_list":["post-202042","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-genel","tag-umutcanlandi"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/i0.wp.com\/www.tvturk.com\/wp-content\/uploads\/2019\/09\/umutcanlandi_d310dca.jpg?fit=1000%2C666","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/paKIfm-QyK","_links":{"self":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/202042","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/comments?post=202042"}],"version-history":[{"count":0,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/202042\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media\/202043"}],"wp:attachment":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media?parent=202042"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/categories?post=202042"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/tags?post=202042"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}