Prof. Dr. Nesrin Mo\u011fulko\u00e7, T\u00fcrkiye\u2019de yakla\u015f\u0131k 20 bin ki\u015finin \u0130diyopatik Pulmoner Fibrozis (nedeni bilinmeyen akci\u011fer sertle\u015fmesi-\u0130PF) hastas\u0131 oldu\u011funu; ancak b\u00fcy\u00fck bir \u00e7o\u011funlu\u011funun hastal\u0131\u011f\u0131n\u0131n fark\u0131nda olmad\u0131\u011f\u0131n\u0131 s\u00f6yleyerek, “Bu 20 bin hastan\u0131n ancak 8 bini doktorlara ula\u015fabilmi\u015f durumda. Asl\u0131nda hastal\u0131\u011f\u0131n\u0131n fark\u0131nda olmayan \u00e7ok say\u0131da ki\u015fi var” dedi.<\/p>\n
Ege \u00dcniversitesi (E\u00dc) ile Pulmoner Hipertansiyon ve Skleroderma Hasta Derne\u011fi (PAHSSC) i\u015f birli\u011finde, E\u00dc kamp\u00fcs\u00fcnde nadir g\u00f6r\u00fclen bir hastal\u0131k olan \u0130diyopatik Pulmoner Fibrozis (nedeni bilinmeyen akci\u011fer sertle\u015fmesi-\u0130PF) hastal\u0131\u011f\u0131na y\u00f6nelik fark\u0131ndal\u0131k etkinli\u011fi yap\u0131ld\u0131. Etkinlikte konu\u015fan Ege \u00dcniversitesi Rekt\u00f6r\u00fc Prof. Dr. Necdet Budak, Ege \u00dcniversitesinin topluma y\u00f6nelik \u00f6nemli projelere imza att\u0131\u011f\u0131n\u0131 hat\u0131rlatarak, \u201cEge \u00dcniversitesi olarak Nesrin hocam\u0131zla gurur duyuyoruz. Hocam\u0131z, kendisini i\u015fine ve hastas\u0131na adam\u0131\u015f idealist biri. \u00dclke olarak, her alanda b\u00f6yle insanlara ihtiyac\u0131m\u0131z var. Bu t\u00fcr faaliyetlerin artmas\u0131, fark\u0131ndal\u0131k \u00e7al\u0131\u015fmalar\u0131n\u0131n yap\u0131lmas\u0131na \u00f6nem veriyoruz. Ege \u00dcniversitesi olarak, bu etkinliklere katk\u0131 sunmay\u0131 s\u00fcrd\u00fcrece\u011fiz. Hastalar\u0131m\u0131z\u0131n \u00fcniversitemizde \u015fifa bulmas\u0131 i\u00e7in yanlar\u0131nda olmaya devam edece\u011fiz” dedi.<\/p>\n
“20 bin hasta var”<\/p>\n
Ege \u00dcniversitesinin T\u00fcrkiye\u2019deki Avrupa standartlar\u0131na uygun tek Pulmoner Arteriyel Hipertansiyon Merkezine sahip oldu\u011funu kaydeden Prof. Dr. Nesrin Mo\u011fulko\u00e7, T\u00fcrkiye\u2019de yakla\u015f\u0131k 20 bin ki\u015finin \u0130PF hastas\u0131 oldu\u011funu; ancak b\u00fcy\u00fck bir \u00e7o\u011funlu\u011funun hastal\u0131\u011f\u0131n\u0131n fark\u0131nda olmad\u0131\u011f\u0131n\u0131 s\u00f6yledi. \u0130PF hastal\u0131\u011f\u0131n\u0131n fark\u0131ndal\u0131\u011f\u0131n\u0131n art\u0131r\u0131lmas\u0131na y\u00f6nelik ilk fark\u0131ndal\u0131k etkinli\u011fine E\u00dc\u2019n\u00fcn ev sahipli\u011fi yapt\u0131\u011f\u0131n\u0131 vurgulayan Prof. Dr. Mo\u011fulko\u00e7, “Birlikte y\u00fcr\u00fcy\u00fcp birlikte ko\u015faca\u011f\u0131z. \u00dclkemizde yakla\u015f\u0131k 20 bin ki\u015finin \u0130PF hastas\u0131 oldu\u011funu d\u00fc\u015f\u00fcn\u00fcyoruz. Bu 20 bin hastan\u0131n; ancak 8 bini doktorlara ula\u015fabilmi\u015f durumda. Asl\u0131nda hastal\u0131\u011f\u0131n\u0131n fark\u0131nda olmayan \u00e7ok say\u0131da ki\u015fi var. Bizim amac\u0131m\u0131z; bunu duyurmak ve do\u011fru hastalar\u0131n do\u011fru merkezlere ula\u015fmas\u0131n\u0131 sa\u011flayarak, gecikme s\u00fcreci olan 2 y\u0131ll\u0131k s\u00fcreyi minimuma indirmek ve daha erken tedaviyi tan\u0131 olanaklar\u0131na gerekirse organ nakline ula\u015fmalar\u0131n\u0131 sa\u011flamak. O y\u00fczden bu etkinlikler \u00e7ok \u00f6nemli. Bizler ayakta oldu\u011fumuz s\u00fcrece her zaman hastalar\u0131m\u0131z\u0131n yan\u0131nda olaca\u011f\u0131z\u201d \u015feklinde konu\u015ftu.<\/p>\n
2 binde 1 g\u00f6r\u00fclen bir hastal\u0131k<\/p>\n
Kendisi de \u0130PF hastas\u0131 olan ve akci\u011fer nakliyle sa\u011fl\u0131\u011f\u0131na kavu\u015fan PAHSSC Derne\u011fi Ba\u015fkan\u0131 Kamil Hamidullah, fark\u0131ndal\u0131k \u00e7al\u0131\u015fmalar\u0131n\u0131 E\u00dc\u2019n\u00fcn deste\u011fiyle y\u00fcr\u00fctt\u00fcklerini dile getirdi. \u0130PF\u2019nin bilinen bir tedavisi olmad\u0131\u011f\u0131n\u0131 kaydeden Ba\u015fkan Hamidullah, \u201cBu hastal\u0131k 2 bin ki\u015fide 1 g\u00f6r\u00fclen nadir ve tedavisi olmayan bir hastal\u0131k. Mevcut ila\u00e7 tedavileri ile hastal\u0131\u011f\u0131n ilerlemesi durdurulmaya veya yava\u015flat\u0131lmaya \u00e7al\u0131\u015f\u0131l\u0131yor. \u0130la\u00e7 tedavisinin yetersiz kalmas\u0131 durumunda da organ nakli se\u00e7ene\u011fi g\u00fcndeme geliyor. \u0130PF multidisipliner bir yakla\u015f\u0131mla takip edilmesi gereken bir hastal\u0131k t\u00fcr\u00fc. Avrupa standartlar\u0131nda merkez kategorisinde \u00fclkemizde tek bir hastane mevcut o da Ege \u00dcniversitesi. Amac\u0131m\u0131z, bu hastal\u0131\u011fa y\u00f6nelik fark\u0131ndal\u0131\u011f\u0131 hem toplumda, hem hastalarda hem de hasta yak\u0131nlar\u0131nda artt\u0131rmak. Desteklerinden dolay\u0131 Ege \u00dcniversitesine, Rekt\u00f6r Hocam\u0131za ve Nesrin Hocam\u0131za te\u015fekk\u00fcr ediyorum\u201d dedi.<\/p>\n
Hasta ve hasta yak\u0131nlar\u0131n\u0131 E\u00dc \u00e7at\u0131s\u0131 alt\u0131nda bulu\u015fturan etkinli\u011fe kat\u0131lanlar, E\u00dc lojmanlar\u0131n\u0131n bulundu\u011fu ormanl\u0131k alanda ko\u015farak \u0130PF hastal\u0131\u011f\u0131na dikkat \u00e7ekmeye \u00e7al\u0131\u015ft\u0131.<\/p>\n
Etkinli\u011fe ayr\u0131ca E\u00dc Rekt\u00f6r Yard\u0131mc\u0131s\u0131 Prof. Dr. Kutsal Turhan, hasta ve hasta yak\u0131nlar\u0131 kat\u0131ld\u0131.<\/p>\n","protected":false},"excerpt":{"rendered":"
EGE \u00dcN\u0130VERS\u0130TES\u0130 (E\u00dc) \u0130LE PULMONER H\u0130PERTANS\u0130YON VE SKLERODERMA HASTA DERNE\u011e\u0130 (PAHSSC) \u0130\u015e B\u0130RL\u0130\u011e\u0130NDE, E\u00dc KAMP\u00dcS\u00dcNDE NAD\u0130R G\u00d6R\u00dcLEN B\u0130R HASTALIK OLAN \u0130D\u0130YOPAT\u0130K PULMONER F\u0130BROZ\u0130S (NEDEN\u0130 B\u0130L\u0130NMEYEN AKC\u0130\u011eER SERTLE\u015eMES\u0130-\u0130PF) HASTALI\u011eINA Y\u00d6NEL\u0130K FARKINDALIK ETK\u0130NL\u0130\u011e\u0130 YAPILDI.<\/p>\n","protected":false},"author":1,"featured_media":206557,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[15152,8690,52161,213,2039,12199,52160,2383,181],"class_list":["post-206556","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-genel","tag-farkinda","tag-ancak","tag-bazilari","tag-bin","tag-degil","tag-hastaliktan","tag-kiside","tag-turkiyede","tag-var"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/i0.wp.com\/www.tvturk.com\/wp-content\/uploads\/2019\/09\/turkiyede-bu-hastaliktan-20-bin-kiside-var-ancak-bazilari-farkinda-degil_593a8a3.jpg?fit=1000%2C668","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/paKIfm-RJy","_links":{"self":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/206556","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/comments?post=206556"}],"version-history":[{"count":0,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/206556\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media\/206557"}],"wp:attachment":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media?parent=206556"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/categories?post=206556"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/tags?post=206556"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}