\u0130stanbul\u2019un Gaziosmanpa\u015fa il\u00e7esinde ya\u015fayan 31 ya\u015f\u0131ndaki Merve Meri\u00e7, epilepsi, serebral palsi, hidrosefali ve distoni hastas\u0131 3 bu\u00e7uk ya\u015f\u0131ndaki k\u0131z\u0131 \u00d6yk\u00fc\u2019n\u00fcn tedavilerini kar\u015f\u0131layabilmek i\u00e7in yapt\u0131\u011f\u0131 battaniyeleri internet \u00fczerinden satsa da tedavi masraflar\u0131n\u0131 kar\u015f\u0131layam\u0131yor. Ac\u0131 i\u00e7inde inleyen k\u0131z\u0131n\u0131n tedavisi anne, \u201c\u00d6yk\u00fc\u2019de y\u00fcr\u00fcme, oturma, emekleme, konu\u015fma yok, tedavisi i\u00e7in hay\u0131rseverlerden yard\u0131m istiyorum” dedi.<\/p>\n
Gaziosmanpa\u015fa\u2019da ya\u015fayan 31 ya\u015f\u0131ndaki Merve Meri\u00e7\u2019in ilk \u00e7ocu\u011fu \u00d6yk\u00fc, 6 bu\u00e7uk ayl\u0131k do\u011fduktan sonra beyin kanamas\u0131 ge\u00e7irdi. Sonras\u0131nda ise \u00d6yk\u00fc\u2019ye, epilepsi, serebral palsi ve hidrosefali tan\u0131lar\u0131 kondu. Gen\u00e7 anne bir yandan bebe\u011fini kuca\u011f\u0131na alman\u0131n mutlulu\u011funu ya\u015farken bir yandan da minik bebe\u011fe konulan tan\u0131larla b\u00fcy\u00fck \u00fcz\u00fcnt\u00fc ya\u015fad\u0131. Uzun s\u00fcre doktorlara giderek k\u0131z\u0131n\u0131n hastal\u0131klar\u0131na \u00e7\u00f6z\u00fcm arayan Merve Meri\u00e7, yakla\u015f\u0131k 2 y\u0131l \u00f6nce de kocas\u0131yla ya\u015fad\u0131\u011f\u0131 evden ayr\u0131larak \u00e7ocuklar\u0131yla annesinin yan\u0131na yerle\u015fti. \u00d6te yandan Minik \u00d6yk\u00fc de distoni rahats\u0131zl\u0131\u011f\u0131n\u0131n da g\u00f6r\u00fclmeye ba\u015flamas\u0131yla k\u00fc\u00e7\u00fck k\u0131z\u0131n ac\u0131lar\u0131 iyice artt\u0131. \u0130ki \u00e7ocu\u011fu ve 60 ya\u015f\u0131ndaki annesiyle kira evlerinde ge\u00e7inmeye \u00e7al\u0131\u015fan Meri\u00e7, minik \u00d6yk\u00fc\u2019n\u00fcn hastal\u0131klar\u0131na y\u00f6nelik tedavileri y\u00fcr\u00fct\u00fcrken maddi zorluklar ya\u015famaya ba\u015flad\u0131.<\/p>\n
Minik k\u0131z\u0131n tedavi masraflar\u0131 i\u00e7in battaniye yap\u0131p sat\u0131yor<\/p>\n
\u015eu an 3 bu\u00e7uk ya\u015f\u0131nda olan ve 4 hastal\u0131kla birden m\u00fccadele eden minik \u00d6yk\u00fc\u2019n\u00fcn ac\u0131 i\u00e7inde olmas\u0131n\u0131n kendisini \u00e7ok \u00fczd\u00fc\u011f\u00fcn\u00fc ifade eden anne, fizik tedavi hareketlerini k\u0131z\u0131na evde kendi imkanlar\u0131yla yapt\u0131rmaya \u00e7al\u0131\u015fsa da yeterli olmuyor. Anne Merve Meri\u00e7, k\u0131z\u0131n\u0131n tedavi masraflar\u0131n\u0131 kar\u015f\u0131layabilmek i\u00e7in evde annesiyle el eme\u011fi g\u00f6z nuru battaniye yap\u0131p internet \u00fczerinden sat\u0131yor. K\u0131z\u0131n\u0131n konu\u015famad\u0131\u011f\u0131n\u0131, y\u00fcr\u00fcyemedi\u011fini s\u00f6yleyen gen\u00e7 anne, k\u0131z\u0131n\u0131n hareket edebilmek i\u00e7in aparat kulland\u0131\u011f\u0131n\u0131 ancak aparatlar\u0131n belirli periyotlarla de\u011fi\u015ftirilmesi gerekti\u011fini s\u00f6yledi. Gen\u00e7 anne, k\u0131z\u0131n\u0131n tedavileri i\u00e7in yard\u0131m bekliyor.<\/p>\n
\u201cY\u00fcr\u00fcme, oturma, emekleme, konu\u015fma yok\u201d<\/p>\n
Minik k\u0131z\u0131na annesiyle birlikte bakt\u0131\u011f\u0131n\u0131 ifade eden anne Merve Meri\u00e7, \u201cYedi ya\u015f\u0131ndan beri bize sadece annem bak\u0131yor, 3 tane evlad\u0131n\u0131 kendisi b\u00fcy\u00fctt\u00fc. Bende daha sonra e\u015fimden ayr\u0131l\u0131p 2 y\u0131l \u00f6nce buraya geldim. \u0130ki seneden fazlad\u0131r annemle birlikte 2 \u00e7ocu\u011fuma bak\u0131yorum. K\u0131z\u0131m 6 bu\u00e7uk ayl\u0131k do\u011fdu. Do\u011fduktan bir s\u00fcre sonra beyin kanamas\u0131 ge\u00e7irdi, bundan sonra epilepsi, serebral palsi ve hidrosefali tan\u0131s\u0131 kondu. Hidrosefali i\u00e7in normalde \u015fant tak\u0131lmas\u0131 gerekirken k\u0131z\u0131m\u0131n beynindeki su toplamas\u0131 kendi kendini att\u0131. \u015eanta gerek duyulmad\u0131 ama kafa b\u00fcy\u00fcmesi hala takip ediliyor. \u015euan 3 bu\u00e7uk ya\u015f\u0131nda ayr\u0131ca distoni rahats\u0131zl\u0131\u011f\u0131 var, v\u00fccudunda kas\u0131lmalardan dolay\u0131 titreme var. Y\u00fcr\u00fcme, oturma, emekleme, konu\u015fma yok a\u011fz\u0131ndan kelimeler \u00e7\u0131k\u0131yor fakat bizim gibi de\u011fil. Derdini anlatmaya \u00e7al\u0131\u015f\u0131yor, bunu da \u00e7al\u0131\u015farak yapt\u0131k. Normalde bize hi\u00e7bir \u015fey yapamaz derken \u015fu anda k\u0131z\u0131m \u2019Annecim\u2019 demeye susad\u0131\u011f\u0131n\u0131 s\u00f6ylemeye \u00e7al\u0131\u015f\u0131yor. Rahats\u0131zl\u0131klar\u0131ndan dolay\u0131 4 senede ancak bu kadar yol kat edebildik. Devlet bize bir seans bireysel e\u011fitim, bir seans da fizik tedavi veriyor. Ama k\u0131z\u0131m\u0131n yo\u011fun bir \u015fekilde her g\u00fcn fizik tedavi almas\u0131 gerekiyor. Kas\u0131lmalar\u0131ndan dolay\u0131 k\u0131z\u0131ma botoks d\u00fc\u015f\u00fcn\u00fcl\u00fcyor” ifadelerini kulland\u0131.<\/p>\n
K\u0131z\u0131n\u0131n tedavi ihtiya\u00e7lar\u0131n\u0131 kar\u015f\u0131layabilmek i\u00e7in battaniye yap\u0131p satan anne Merve Meri\u00e7, \u201c\u0130nternet \u00fczerinden sat\u0131\u015f yap\u0131yorum. \u0130nsanlar \u00d6yk\u00fc\u2019n\u00fcn durumunu g\u00f6rd\u00fck\u00e7e ne kadar zorland\u0131\u011f\u0131m\u0131z\u0131 anl\u0131yorlar. Daha \u00e7ok yard\u0131m etmeye \u00e7al\u0131\u015f\u0131yorlar. Tek, \u00e7ift ki\u015filik ve \u00e7ocuk battaniyesi yap\u0131yorum. \u0130htiya\u00e7lar\u0131 yoksa bile destek olmak ama\u00e7l\u0131 sipari\u015f veriyorlar. Elimde olan bir tane cihaz\u0131m \u015fu an bin 500 lira hi\u00e7bir \u015fekilde yeti\u015femiyoruz. Ben sesimi duyurabildi\u011fim herkesten yard\u0131m bekliyorum. K\u0131z\u0131m i\u00e7in devlet yetkililerinden, hay\u0131rseverlerden yard\u0131m bekliyor. Fizik tedavi olarak, yapt\u0131rmam\u0131z gereken cihazlar, tedaviler i\u00e7in yard\u0131m bekliyorum. Ben olmazsam yar\u0131n \u00f6b\u00fcr g\u00fcn cihazla beraber yeme\u011fini yiyebilmesi, suyunu alabilmesi kendi hayat\u0131n\u0131 idame ettirmesi i\u00e7in \u00e7al\u0131\u015f\u0131yorlar\u201d dedi.<\/p>\n","protected":false},"excerpt":{"rendered":"
\u0130STANBUL’UN GAZ\u0130OSMANPA\u015eA \u0130L\u00c7ES\u0130NDE YA\u015eAYAN 31 YA\u015eINDAK\u0130 MERVE MER\u0130\u00c7; EP\u0130LEPS\u0130, SEREBRAL PALS\u0130, H\u0130DROSEFAL\u0130 VE D\u0130STON\u0130 HASTASI 3 BU\u00c7UK YA\u015eINDAK\u0130 KIZI \u00d6YK\u00dc\u2019N\u00dcN TEDAV\u0130LER\u0130N\u0130 KAR\u015eILAYAB\u0130LMEK \u0130\u00c7\u0130N YARDIM BEKL\u0130YOR<\/p>\n","protected":false},"author":1,"featured_media":220602,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"jetpack_post_was_ever_published":false},"categories":[1],"tags":[1073,872,4378,4601,55861,1636,1520,1736],"class_list":["post-220601","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-genel","tag-ozel","tag-aci","tag-bekliyor","tag-icinde","tag-inleyen","tag-minik","tag-oyku","tag-yardim"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/i0.wp.com\/www.tvturk.com\/wp-content\/uploads\/2019\/10\/ozel-aci-icinde-inleyen-minik-oyku-yardim-bekliyor_b20817b.jpg?fit=1000%2C666","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/paKIfm-Vo5","_links":{"self":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/220601","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/comments?post=220601"}],"version-history":[{"count":0,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/220601\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media\/220602"}],"wp:attachment":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media?parent=220601"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/categories?post=220601"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/tags?post=220601"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}