Manisa\u2019da, Duchenne Muskuler Distrofi (DMD) ad\u0131yla bilinen \u2019kas erimesi\u2019 hastas\u0131 olan 18 ya\u015f\u0131ndaki Mehmet Kandemir, g\u00fcnden g\u00fcne erirken, sadece Hindistan\u2019da yap\u0131lan k\u00f6k h\u00fccre naklinin hayaliyle ya\u015f\u0131yor. Maddi durumu yetersiz olan ailesinin Hindistan\u2019daki tedavi masraflar\u0131n\u0131 kar\u015f\u0131layamad\u0131\u011f\u0131 i\u00e7in yard\u0131mseverlerden destek bekledi\u011fini s\u00f6yleyen \u00e7aresiz gen\u00e7, \u201c\u00d6lmek istemiyorum. L\u00fctfen yard\u0131m edin” dedi.<\/p>\n
Manisa\u2019n\u0131n \u015eehzadeler il\u00e7esinde ya\u015fayan H\u00fcseyin-Hatice Kandemir \u00e7iftinin iki \u00e7ocu\u011fundan k\u00fc\u00e7\u00fc\u011f\u00fc olan 18 ya\u015f\u0131ndaki Mehmet Kandemir, 4 ya\u015f\u0131nda Duchenne Muskuler Distrofi (DMD) ad\u0131yla bilinen \u2019kas erimesi\u2019 hastal\u0131\u011f\u0131 te\u015fhisi kondu. 15 ya\u015f\u0131nda kadar b\u00fcy\u00fck bir azimle y\u00fcr\u00fcmeye gayret eden Mehmet Kandemir 15 ya\u015f\u0131ndan sonra art\u0131k yard\u0131ms\u0131z kendi i\u015flerini yapamaz hale geldi. Ge\u00e7ti\u011fimiz y\u0131l liseyi bitiren ve ayn\u0131 zamanda fanatik bir Be\u015fikta\u015f taraftar\u0131 olan 18 ya\u015f\u0131ndaki Mehmet Kandemir, hastal\u0131\u011f\u0131n\u0131n g\u00fcnden g\u00fcne ilerlemesini durduramaman\u0131n \u00e7aresizli\u011fiyle s\u00fcrekli \u00f6l\u00fcm korkusuyla ya\u015f\u0131yor.<\/p>\n
End\u00fcstri Meslek Lisesi Bili\u015fim mezunu olan Mehmet Kandemir, \u201cBenim, Duchenne Muskuler Distrofi kas hastal\u0131\u011f\u0131m var. Bunun Hindistan\u2019da tedavisi varm\u0131\u015f. Ailemin maddi durumu yetmedi\u011fi i\u00e7in gidemiyoruz. Hastal\u0131\u011f\u0131m tedavi olmazsa bir s\u00fcre sonra yatalak duruma d\u00fc\u015fece\u011fim, sonra solunum cihaz\u0131 ve bir s\u00fcre sonra \u00f6l\u00fcmle sonu\u00e7lanacak. Ben bu y\u00fczden \u00f6lmek istemiyorum. L\u00fctfen yard\u0131m edin. Y\u00fcr\u00fcmem bozulana kadar fazla bir s\u0131k\u0131nt\u0131m yoktu. Y\u00fcr\u00fcmem bozulduktan sonra s\u0131k\u0131nt\u0131lar\u0131m ba\u015flad\u0131. Millet y\u00fcr\u00fcd\u00fck\u00e7e ben y\u00fcr\u00fcyemedim bu durum beni \u00e7ok etkiledi ve psikolojim bozuldu. Hastal\u0131\u011f\u0131m her ge\u00e7en g\u00fcn ilerledi. \u00d6nceden y\u00fcr\u00fcyordum, tekerlekli sandalyeden d\u00fc\u015ft\u00fc\u011f\u00fcmde ayaklar\u0131m\u0131 hareket ettirebiliyordum. \u015eimdi o kadar hareket ettiremiyorum. Bu hastal\u0131kta ya\u015f ne kadar b\u00fcy\u00fcd\u00fck\u00e7e o kadar ilerliyor” dedi.<\/p>\n
Fanatik Be\u015fikta\u015fl\u0131<\/p>\n
Do\u011fu\u015ftan Be\u015fikta\u015f taraftar\u0131 oldu\u011funu kaydeden Kandemir, \u201cBug\u00fcne kadar Be\u015fikta\u015f\u2019\u0131n b\u00fct\u00fcn ma\u00e7lar\u0131n\u0131 izlemi\u015fimdir. Ben b\u00fct\u00fcn Be\u015fikta\u015f taraftarlar\u0131ndan, spor kul\u00fcplerinden yard\u0131m bekliyorum. L\u00fctfen sesimi duyun. Yeni Ba\u015fkan\u0131m\u0131z Ahmet Nuri \u00c7ebi\u2019den de herkesten yard\u0131m istiyorum t\u00fcm spor kul\u00fcplerimizden yard\u0131m istiyorum” diye konu\u015ftu.<\/p>\n
Tek \u00e7are Hindistan\u2019da<\/p>\n
Hastal\u0131\u011f\u0131n tek tedavisinin Hindistan\u2019da oldu\u011funu anlatan Kandemir, \u201cBu hastal\u0131\u011f\u0131n tedavisi \u015fimdilik sadece orada varm\u0131\u015f. 2020\u2019de K\u0131br\u0131s\u2019ta da ba\u015flayaca\u011f\u0131 s\u00f6yleniyor ama ne zaman olaca\u011f\u0131 belli de\u011fil. Haluk Levent\u2019ten, G\u00fclben Ergen\u2019den, Emre Bel\u00f6zo\u011flu\u2019ndan, t\u00fcm futbolcu abilerimden yard\u0131m istiyorum\u201d dedi.<\/p>\n
Evlad\u0131n\u0131n hastal\u0131\u011f\u0131yla m\u00fccadele eden baba H\u00fcseyin Kandemir ise \u015funlar\u0131 s\u00f6yledi:<\/p>\n
“O\u011flumun hastal\u0131\u011f\u0131n\u0131n te\u015fhisi 4 ya\u015f\u0131nda kondu. \u015euanda Hindistan\u2019da tedavisi varm\u0131\u015f. Hindistan\u2019a gidenlerin \u00e7o\u011fundan olumlu yan\u0131t ald\u0131m. L\u00fctfen gelsinler halimizi g\u00f6rs\u00fcnler. Gelsinler ve bizim \u015fu halimizi g\u00f6rs\u00fcnler. Bizim psikolojimiz bozuldu. \u00c7ocu\u011fum bana soruyor, \u2018Baba sen neden zengin olmad\u0131n\u2019 diyor. Herkes zengin olmaz. Ben namusumla, d\u00fcr\u00fcstl\u00fc\u011f\u00fcmle \u00e7al\u0131\u015f\u0131yorum ama imkan\u0131m yok \u00e7ok zorda kal\u0131yorum. \u00c7ocu\u011fum her g\u00fcn \u2018baba beni Hindistan\u2019a ne zaman g\u00f6t\u00fcreceksin, di\u011ferleri gitti, iyile\u015fti\u2019 diyor ama yok elimden gelen bir \u015fey. Bizim imkan\u0131m\u0131z yok diye konu\u015ftu.<\/p>\n
“Hi\u00e7bir \u015fey yapamad\u0131\u011f\u0131m i\u00e7in \u00e7aresizlik i\u00e7indeyiz”<\/p>\n
O\u011flunun eriyi\u015fine tan\u0131kl\u0131k eden anne Hatice Kandemir, \u201c\u00c7ocu\u011fum DMD kas hastas\u0131. Hastal\u0131\u011f\u0131 ilerledik\u00e7e ilerledi. Art\u0131k hayat\u0131n\u0131 tehdit etmeye ba\u015flad\u0131. Organlar\u0131n\u0131n \u00e7al\u0131\u015fmas\u0131 \u00e7ok zay\u0131flad\u0131. \u00c7ocu\u011fum iyi olamad\u0131\u011f\u0131 i\u00e7in \u00fcz\u00fcl\u00fcyor. \u2018Herkes Hindistan\u2019a gidiyor, ben de gidece\u011fim, bende gidece\u011fim\u2019 diyor. G\u00f6t\u00fcremedi\u011fimiz i\u00e7in biz de \u00fcz\u00fcl\u00fcyoruz. \u00d6nceden tedavi yok diye \u00fcz\u00fcl\u00fcyorduk \u015fimdi de tedavisi var ama g\u00f6t\u00fcremiyoruz diye \u00fcz\u00fcl\u00fcyoruz. \u00c7ocu\u011fum \u00e7aresizlikten babas\u0131n\u0131 her yere g\u00f6nderiyor. \u2018Git bana tedavi bul gel\u2019 diyor. E\u015fimde sokaklarda \u00e7aresizlikten geziniyor geziniyor sonra eve geliyor. Hi\u00e7bir \u015fey yapamad\u0131\u011f\u0131m\u0131z i\u00e7in \u00e7aresizlik i\u00e7indeyiz. Psikolojimiz bozuldu. 2-3 sene sonra \u00e7ok daha k\u00f6t\u00fc \u015feyler olacak. \u00c7ok korkuyorum \u00e7ocu\u011fuma bir \u015fey olacak diye. Herkesten yard\u0131m bekliyoruz\u201d diyerek g\u00f6zya\u015flar\u0131na bo\u011fuldu.<\/p>\n","protected":false},"excerpt":{"rendered":"
MAN\u0130SA\u2019DA, DUCHENNE MUSKULER D\u0130STROF\u0130 (DMD) ADIYLA B\u0130L\u0130NEN \u2019KAS ER\u0130MES\u0130\u2019 HASTASI OLAN 18 YA\u015eINDAK\u0130 MEHMET KANDEM\u0130R, G\u00dcNDEN G\u00dcNE ER\u0130RKEN, SADECE H\u0130ND\u0130STAN\u2019DA YAPILAN K\u00d6K H\u00dcCRE NAKL\u0130N\u0130N HAYAL\u0130YLE YA\u015eIYOR. MADD\u0130 DURUMU YETERS\u0130Z OLAN A\u0130LES\u0130N\u0130N H\u0130ND\u0130STAN\u2019DAK\u0130 TEDAV\u0130 MASRAFLARINI KAR\u015eILAYAMADI\u011eI \u0130\u00c7\u0130N YARDIMSEVERLERDEN DESTEK BEKLED\u0130\u011e\u0130N\u0130 S\u00d6YLEYEN \u00c7ARES\u0130Z GEN\u00c7, \u201c\u00d6LMEK \u0130STEM\u0130YORUM. L\u00dcTFEN YARDIM ED\u0130N” DED\u0130.<\/p>\n","protected":false},"author":1,"featured_media":225310,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[36072,803,11633,44520,18051],"class_list":["post-225309","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-genel","tag-dmd","tag-genc","tag-hastasi","tag-istemiyorum","tag-olmek"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/i0.wp.com\/www.tvturk.com\/wp-content\/uploads\/2019\/11\/dmd-hastasi-genc-olmek-istemiyorum_21ef080.jpg?fit=1000%2C666","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/paKIfm-WC1","_links":{"self":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/225309","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/comments?post=225309"}],"version-history":[{"count":0,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/225309\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media\/225310"}],"wp:attachment":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media?parent=225309"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/categories?post=225309"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/tags?post=225309"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}