Azerbaycan\u2019da ya\u015fayan 13 ya\u015f\u0131ndaki Deniz Humbatova Nieman-Pick hastas\u0131 olarak d\u00fcnyaya geldi. D\u00fcnyan\u0131n bir\u00e7ok \u00fclkesinde doktorlara giden aile, \u00e7aresiz kald\u0131. Doktorlar\u0131n 13,5 y\u0131l \u00f6m\u00fcr bi\u00e7ti\u011fi \u00e7ocuk, son umut olarak ailesi taraf\u0131ndan T\u00fcrkiye\u2019ye getirildi. Azerbaycanl\u0131 \u00e7ocuk, Yrd. Do\u00e7. Dr. \u00dcmit \u00d6z\u00e7elik taraf\u0131ndan ger\u00e7ekle\u015ftirilen organ nakli ameliyat\u0131 ile hayata tutundu.<\/p>\n
Azerbaycan\u2019da ya\u015fayan 13 ya\u015f\u0131ndaki Deniz Humbatova do\u011fu\u015ftan kal\u0131tsal bir hastal\u0131k olan Nieman-Pick hastas\u0131 olarak d\u00fcnyaya geldi. 1 ya\u015f\u0131nda te\u015fhis konulan talihsiz \u00e7ocuk i\u00e7in ailesi y\u0131llarca d\u00fcnyan\u0131n bir\u00e7ok noktas\u0131nda bulunan hastane ve doktorlara ba\u015fvurdu. Doktorlar\u0131n ortalama 13 bu\u00e7uk y\u0131l \u00f6m\u00fcr bi\u00e7ti\u011fi \u00e7ocuk i\u00e7in hi\u00e7bir \u015fey yapamad\u0131lar. Genel durumu k\u00f6t\u00fcye giden ve art\u0131k solunum cihaz\u0131na ba\u011fl\u0131 olarak ya\u015fayan k\u00fc\u00e7\u00fck deniz de akci\u011fer, karaci\u011fer ve dala\u011f\u0131nda b\u00fcy\u00fck sorunlar ba\u015flad\u0131. Aile hem kendi \u00fclkesinde hem de d\u00fcnyada bulunan bir\u00e7ok doktora gitmeye devam etti. Ancak hi\u00e7bir doktor Deniz\u2019i ameliyat etmeye yana\u015fmad\u0131.<\/p>\n
Azerbaycanl\u0131 aile son umut olarak \u0130stanbul\u2019da bulunan bir \u00f6zel hastaneye ba\u015fvurdu. Burada \u00e7ocu\u011fun durumunu inceleyen Genel Cerrahi Uzman\u0131 Yrd. Do\u00e7. Dr. \u00dcmit \u00d6z\u00e7elik d\u00fcnyada bug\u00fcne kadar sadece 9 vak\u2019ada ger\u00e7ekle\u015ftirilen ameliyat\u0131 yapabileceklerini s\u00f6yledi. Ancak ameliyat\u0131n \u00e7ok riskli oldu\u011funu k\u00fc\u00e7\u00fck Deniz\u2019in ya\u015famas\u0131 i\u00e7in bunun son \u015fans oldu\u011funu aileye ileten \u00d6z\u00e7elik\u2019e, aile ameliyat i\u00e7in onay\u0131 verdi. Medical Park Florya Hastanesi\u2019nde yap\u0131lan ameliyatla Karaci\u011fer nakli yap\u0131lan ve dala\u011f\u0131 al\u0131nan Deniz nihayet sa\u011fl\u0131\u011f\u0131na kavu\u015ftu.<\/p>\n
Deniz bize geldi\u011finde hi\u00e7bir hastane taraf\u0131ndan kabul edilmemi\u015fti<\/p>\n
K\u00fc\u00e7\u00fck \u00e7ocu\u011fun kendilerine geldi\u011finde genel sa\u011fl\u0131k durumunun \u00e7ok k\u00f6t\u00fc oldu\u011funu ve hi\u00e7bir hastanenin Deniz\u2019i kabul etmedi\u011fini belirten Yrd. Do\u00e7. Dr. \u00dcmit \u00d6z\u00e7elik \u201cDeniz\u2019in kal\u0131tsal Niemann-Pick hastal\u0131\u011f\u0131 vard\u0131. 1 ya\u015f\u0131nda tan\u0131s\u0131 konan Deniz yakla\u015f\u0131k 12 y\u0131ld\u0131r bu hastal\u0131kla m\u00fccadele ediyordu. Hastal\u0131\u011f\u0131 ilerledi\u011fi i\u00e7in akci\u011fer, karaci\u011fer ve dala\u011f\u0131nda problem vard\u0131. \u00d6yle olunca \u00e7ok zorlu bir s\u00fcre\u00e7te bize geldi. Bize geldi\u011finde akci\u011fer enfeksiyonu vard\u0131 bir\u00e7ok merkez taraf\u0131ndan da ameliyat edilemez diye reddedilmi\u015fti. Literat\u00fcr de bunla ilgili d\u00fcnya \u00fczerinde 8 veya 9 vak\u2019a var ” ifadelerini kulland\u0131.<\/p>\n
“2015 y\u0131l\u0131ndan \u00f6nce bu \u00e7ocuklar \u00f6l\u00fcme terk ediliyordu”<\/p>\n
\u00d6z\u00e7elik; \u201c2015 y\u0131l\u0131ndan \u00f6nce bu hastal\u0131kla ilgili nakil uygun g\u00f6r\u00fclmedi\u011fi i\u00e7in bu hastalar \u00f6l\u00fcme terk ediliyordu. Biz ailesiyle konu\u015ftuk ortak bir yola \u00e7\u0131kt\u0131k. Bu karar\u0131 verdik ve ameliyat\u0131n denizin kurtulmas\u0131 i\u00e7in tek \u00e7are oldu\u011funu s\u00f6yledik. Ba\u015far\u0131l\u0131 bir ameliyat oldu ameliyatla hem karaci\u011fer naklini ger\u00e7ekle\u015ftirdik hem de dala\u011f\u0131n\u0131 \u00e7\u0131kartt\u0131k. Ameliyattan sonraki s\u00fcre\u00e7te \u00e7ok \u015f\u00fck\u00fcr her \u015fey yolunda gitti bug\u00fcn sa\u011fl\u0131\u011f\u0131na kavu\u015ftu. Bug\u00fcn aram\u0131zda b\u00fct\u00fcn sorunlar\u0131ndan kurtuldu solunum cihaz\u0131na ba\u011fl\u0131 ya\u015famaktan kurtuldu. Art\u0131k di\u011fer \u00e7ocuklar gibi normal ya\u015fam\u0131na d\u00f6nd\u00fc. Herhangi bir s\u0131k\u0131nt\u0131s\u0131 yok 3 ay\u0131 tamamlad\u0131k. Olduk\u00e7a keyifli ve mutlu bizde \u00e7ok mutluyuz o sa\u011fl\u0131\u011f\u0131na kavu\u015ftu\u011fu i\u00e7in. Ben bu vesileyle herkesi organlar\u0131n\u0131 ba\u011f\u0131\u015flamaya davet ediyorum\u201d diye konu\u015ftu.<\/p>\n
“\u0130nsanlara son bir \u015fans verin”<\/p>\n
Do\u011fdu\u011fu g\u00fcnden bu yana hastal\u0131kla m\u00fccadele eden Deniz Humbatova organ ba\u011f\u0131\u015f\u0131 i\u00e7in insanlara seslenerek \u201cB\u00fct\u00fcn d\u00fcnyaya organlar\u0131n\u0131z\u0131 ba\u011f\u0131\u015flay\u0131n demek istiyorum. \u0130nsanlara son bir \u015fans verin. Bu y\u0131l okuluma ba\u015flayamad\u0131m evde \u00f6\u011frenim g\u00f6rmeye devam ediyorum. Gelecek y\u0131l art\u0131k okuluma da gidece\u011fim\u201d dedi.<\/p>\n
Biz 12 y\u0131l her g\u00fcn \u00f6ld\u00fck<\/p>\n
\u00c7ocu\u011funun hastal\u0131\u011f\u0131n\u0131 \u00f6\u011frendi\u011fi g\u00fcnden bu yana hi\u00e7 y\u00fczlerinin g\u00fclmedi\u011fini belirten anne A\u0131da Humbatova \u201cBiz bu 12 y\u0131l da \u00f6yle \u015feyler ya\u015fad\u0131k ki anlatamam bunun ya\u015fanmas\u0131 gerekir. Biz aile olarak her g\u00fcn \u00f6ld\u00fck. Doktorlar\u0131mdan Allah raz\u0131 olsun elleri \u00f6p\u00fclecek insanlar. O\u011flum \u015fimdi mutlu biz ya\u015fam\u0131n bu kadar kolay oldu\u011funu bilmiyorduk. Biz Deniz\u2019in hasta oldu\u011funu \u00f6\u011frendi\u011fimizden bu yana \u00e7ocuk nas\u0131l rahat uyku uyur \u015fimdi g\u00f6rd\u00fck. O kadar rahat bir hayata kavu\u015ftuk ki Allah raz\u0131 olsun doktorlar\u0131m\u0131zdan\u201d dedi.<\/p>\n
“D\u00fcnya da bir\u00e7ok doktoru gezdik ama kimse Deniz\u2019i ameliyat etmeyi kabul etmedi”<\/p>\n
D\u00fcnya\u2019n\u0131n bir \u00e7ok \u00fclkesinde doktor ara\u015ft\u0131rd\u0131klar\u0131n\u0131 ancak kimsenin \u00e7ocu\u011funu ameliyat etmeyi kabul etmedi\u011fini dile getiren anne Humbatova \u201cBiz d\u00fcnya da bir\u00e7ok \u00fclkede ara\u015ft\u0131rd\u0131k. Kabul etmediler Deniz\u2019i, hem de Denizin durumu son raddedeydi. Kabul etmezlerdi biz biliyorduk buraya geldi\u011finde \u00e7ok a\u011f\u0131r durumdayd\u0131. Kabul etmelerine bile inanamad\u0131k. Ya\u015fam \u015fans\u0131 oldu bir \u0131\u015f\u0131k g\u00f6rd\u00fck, \u00e7ok \u015feyler ya\u015fad\u0131k. Bu hastanedeki kocaman ailemizle beraber \u00e7ok mutluyum \u015fimdi. Ama ben kelime bulam\u0131yorum \u015fu anki durumuma\u201d diye konu\u015ftu.<\/p>\n
\u00c7ocuklar\u0131m\u0131z \u00f6l\u00fcp gitmesin<\/p>\n
\u0130nsanlar\u0131 organ ba\u011f\u0131\u015f\u0131na kar\u015f\u0131 duyarl\u0131 olmaya davet eden anne Humbatova, \u201c\u0130nsanlar in\u015fallah organ ba\u011f\u0131\u015f\u0131 konusunda duyarl\u0131 olur. Benim \u00e7ocu\u011fum gibi \u00e7ok fazla \u00e7ocuk var hasta olan onlar\u0131n annelerini ve babalar\u0131n\u0131 d\u00fc\u015f\u00fcns\u00fcnler. Bir ya\u015fam \u015fans\u0131 versinler onlara \u00e7ocuklar\u0131m\u0131z b\u00f6yle \u00f6l\u00fcp gitmesin\u201d \u015feklinde konu\u015ftu.<\/p>\n","protected":false},"excerpt":{"rendered":"
AZERBAYCAN\u2019DA YA\u015eAYAN 13 YA\u015eINDAK\u0130 DEN\u0130Z HUMBATOVA N\u0130EMAN-P\u0130CK HASTASI OLARAK D\u00dcNYAYA GELD\u0130. D\u00dcNYANIN B\u0130R\u00c7OK \u00dcLKES\u0130NDE DOKTORLARA G\u0130DEN A\u0130LE, \u00c7ARES\u0130Z KALDI. DOKTORLARIN 13,5 YIL \u00d6M\u00dcR B\u0130\u00c7T\u0130\u011e\u0130 \u00c7OCUK, SON UMUT OLARAK A\u0130LES\u0130 TARAFINDAN T\u00dcRK\u0130YE’YE GET\u0130R\u0130LD\u0130. AZERBAYCANLI \u00c7OCUK, YRD. DO\u00c7. DR. \u00dcM\u0130T \u00d6Z\u00c7EL\u0130K TARAFINDAN GER\u00c7EKLE\u015eT\u0130R\u0130LEN ORGAN NAKL\u0130 AMEL\u0130YATI \u0130LE HAYATA TUTUNDU.<\/p>\n","protected":false},"author":1,"featured_media":233964,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[1],"tags":[12634,9366,1008,2159,1197,4467,10453,2383,4468,27103,530],"class_list":["post-233963","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-genel","tag-ameliyatla","tag-bircok","tag-cocuk","tag-denilen","tag-dunyanin","tag-hayata","tag-olur","tag-turkiyede","tag-tutundu","tag-ulkesinde","tag-yapilan"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/i0.wp.com\/www.tvturk.com\/wp-content\/uploads\/2019\/11\/dunyanin-bircok-ulkesinde-olur-denilen-cocuk-turkiyede-yapilan-ameliyatla-hayata-tutundu_03db1d9.jpg?fit=1000%2C750","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/paKIfm-YRB","_links":{"self":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/233963","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/comments?post=233963"}],"version-history":[{"count":0,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/233963\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media\/233964"}],"wp:attachment":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media?parent=233963"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/categories?post=233963"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/tags?post=233963"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}