Bart\u0131n\u2019da 40 g\u00fcn \u00f6nce Sturge Weber sendromu hastal\u0131\u011f\u0131 ile d\u00fcnyaya gelen Hira bebe\u011fin ailesi, k\u0131zlar\u0131n\u0131n tedavisi i\u00e7in destek bekliyor.<\/p>\n
Bart\u0131n\u2019da 2 y\u0131l \u00f6nce evlenen H\u00fcseyin (27) ve Esra (20) Bozac\u0131 \u00e7iftinin 40 g\u00fcn \u00f6nce Hira ismini verdikleri k\u0131z \u00e7ocuklar\u0131 d\u00fcnyaya geldi. Do\u011fumdan sonra hemen yo\u011fun bak\u0131ma al\u0131nan bebe\u011fin v\u00fccudunda k\u0131zar\u0131kl\u0131klar olu\u015ftu. Yap\u0131lan tetkiklerde bebe\u011fin 50 bin do\u011fumda bir g\u00f6r\u00fclen Sturge Weber sendromu hastas\u0131 oldu\u011fu belirlendi. 1 hafta sonra taburcu edilen bebek ertesi g\u00fcn de epilepsi n\u00f6beti ge\u00e7irerek yeniden hastaneye kald\u0131r\u0131ld\u0131. Bart\u0131n\u2019dan Ankara\u2019ya sevk edilen bebe\u011fin epilepsi hastal\u0131\u011f\u0131 i\u00e7in ila\u00e7 tedavisi uygulan\u0131rken, v\u00fccudundaki k\u0131zar\u0131kl\u0131klar i\u00e7in de \u00f6zel hastaneye sevk yap\u0131ld\u0131. \u00d6zel hastanede bebe\u011fin seans \u00fccreti 5 bin 500 lira olan lazer tedavisi ile Sturge Weber sendromu hastal\u0131\u011f\u0131ndan kurtulabilece\u011fi belirtildi. Bart\u0131n\u2019da tamircilik yaparak hayatlar\u0131n\u0131 s\u00fcrd\u00fcren aile, ortalama 10 seans s\u00fcrecek tedavi i\u00e7in yetkililerden ve hay\u0131rseverler yard\u0131m bekliyor.<\/p>\n
SGK\u2019n\u0131n da kar\u015f\u0131lamad\u0131\u011f\u0131 tedavi s\u00fcreci i\u00e7in hay\u0131rseverlerden destek beklediklerini ifade eden anne Esra Bozac\u0131, \u201cBebe\u011fim ge\u00e7ti\u011fimiz ay Bart\u0131n Kad\u0131n Do\u011fum\u2019da d\u00fcnyaya geldi. Do\u011fum yapt\u0131m, \u00e7ocu\u011fumu direkt yo\u011fun bak\u0131ma alm\u0131\u015flar. Solunumu gitmi\u015f, t\u00fcpe ba\u011flam\u0131\u015flar. Birde \u00e7ocu\u011fumun sa\u011f taraf\u0131nda bir morluklar vard\u0131 damar geni\u015flemesinden dolay\u0131. 1 hafta yo\u011fun bak\u0131mda yatt\u0131. Eve geldik, 1 g\u00fcn sonra da epilepsi n\u00f6beti ge\u00e7irdi. Tekrar hastaneye yatt\u0131. Oradan Ankara\u2019ya sevk ettiler. 13 g\u00fcn Ankara\u2019da yatt\u0131. Orada epilepsi i\u00e7in tedavi uyguland\u0131. Daha sonra morluk i\u00e7in Hacettepe\u2019ye sevk ettiler. Orada doktor lazer tedavisi olmas\u0131 gerekti\u011fini, sa\u011f taraf\u0131nda damar geni\u015flemesi oldu\u011fu i\u00e7in \u015fi\u015fti\u011fini s\u00f6yledi. \u015eu an bu lazer tedavisi tek seans\u0131 i\u00e7in 5 bin 500 lira istiyorlar. Acilen \u00e7ocu\u011fumun tedavi olmas\u0131 laz\u0131m. Bunu yapt\u0131rmaya durumumuz yok. Bu konuda yard\u0131m bekliyoruz.\u201d dedi.<\/p>\n","protected":false},"excerpt":{"rendered":"
BARTIN\u2019DA 40 G\u00dcN \u00d6NCE STURGE WEBER SENDROMU HASTALI\u011eI \u0130LE D\u00dcNYAYA GELEN H\u0130RA\u2019NIN A\u0130LES\u0130 KIZLARININ TEDAV\u0130S\u0130 \u0130\u00c7\u0130N DESTEK BEKL\u0130YOR.<\/p>\n","protected":false},"author":1,"featured_media":243895,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"jetpack_post_was_ever_published":false},"categories":[1],"tags":[2123,4378,61,891,44,144],"class_list":["post-243894","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-genel","tag-bebek","tag-bekliyor","tag-destek","tag-gunluk","tag-icin","tag-tedavi"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/i0.wp.com\/www.tvturk.com\/wp-content\/uploads\/2019\/12\/40-gunluk-bebek-tedavi-icin-destek-bekliyor_28caf90.jpg?fit=1000%2C750","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/paKIfm-11rM","_links":{"self":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/243894","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/comments?post=243894"}],"version-history":[{"count":0,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/243894\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media\/243895"}],"wp:attachment":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media?parent=243894"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/categories?post=243894"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/tags?post=243894"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}