{"id":35391,"date":"2019-02-15T12:41:45","date_gmt":"2019-02-15T09:41:45","guid":{"rendered":"http:\/\/www.tvturk.com\/index.php\/umutlandiran-mujdenin-ardindan-pastali-ilk-dogum-gunu-kutlamasi\/"},"modified":"2019-02-15T12:41:55","modified_gmt":"2019-02-15T09:41:55","slug":"umutlandiran-mujdenin-ardindan-pastali-ilk-dogum-gunu-kutlamasi","status":"publish","type":"post","link":"http:\/\/www.tvturk.com\/index.php\/umutlandiran-mujdenin-ardindan-pastali-ilk-dogum-gunu-kutlamasi\/","title":{"rendered":"\u2019Umut\u2019land\u0131ran m\u00fcjdenin ard\u0131ndan pastal\u0131 ilk do\u011fum g\u00fcn\u00fc kutlamas\u0131"},"content":{"rendered":"

Antalya\u2019da Spinal M\u00fcsk\u00fcler Atrofi (SMA) hastal\u0131\u011f\u0131na yakalanan \u00e7ocuklar\u0131n 5 ya\u015f\u0131na kadar ya\u015fad\u0131\u011f\u0131n\u0131 \u00f6\u011frendikten sonra do\u011fum g\u00fcn\u00fc kutlamak istemeyen SMA Tip 2 hastas\u0131 Umutcan K\u0131l\u0131\u00e7, hastal\u0131\u011f\u0131na umut olacak ilac\u0131n onaylanmas\u0131n\u0131n ard\u0131ndan annesiyle ayn\u0131 g\u00fcn olan do\u011fum g\u00fcn\u00fcn\u00fc 4 y\u0131l aradan sonra b\u00fcy\u00fck bir sevin\u00e7le kutlad\u0131. Umutcan\u2019\u0131n, pastan\u0131n mumlar\u0131n\u0131 \u00fcfledikten sonra ilk dile\u011fi ise SMA hastas\u0131 arkada\u015flar\u0131n\u0131n da ilac\u0131n\u0131 alabilmesi oldu.<\/p>\n

Antalya\u2019n\u0131n Muratpa\u015fa il\u00e7esinde sa\u011fl\u0131k personeli Rukiye Cop\u2019un 2 \u00e7ocu\u011fundan en k\u00fc\u00e7\u00fc\u011f\u00fc olan 6 ya\u015f\u0131ndaki Umutcan K\u0131l\u0131\u00e7\u2019a, 1 ya\u015f\u0131nda kas hastal\u0131\u011f\u0131 olarak da bilinen SMA Tip 2 te\u015fhisi konuldu. Te\u015fhis \u00f6ncesinde 7 aya kadar emekleyebilen hatta erken y\u00fcr\u00fcyece\u011fi d\u00fc\u015f\u00fcn\u00fclen Umutcan, 8. aydan itibaren hareketlerinde k\u0131s\u0131tlanmalar meydana geldi. Bunun \u00fczerine anne Rukiye Cop, hastane hastane gezerek o\u011flunun hastal\u0131\u011f\u0131n\u0131n tespit edilmesi i\u00e7in yo\u011fun gayret sarf etti. \u00c7e\u015fitli testlerden ge\u00e7en Umutcan, 1 ya\u015f\u0131na geldi\u011finde ise SMA Tip 2 te\u015fhisi konuldu. Ac\u0131 haberi alan anne Rukiye Cop, pes etmeyerek \u00e7ocu\u011funun y\u00fcr\u00fcyebilmesi i\u00e7in fizik terapi merkezlerinde \u00e7aba sarf etti, ancak sonu\u00e7 alamad\u0131.<\/p>\n

Dile\u011fi, di\u011fer SMA hastas\u0131 \u00e7ocuklar\u0131 oldu<\/p>\n

SMA Tip 2 hastalar\u0131n\u0131n 5 ya\u015f\u0131na kadar ya\u015fayabildi\u011fini \u00f6\u011frenen aile, her y\u0131l \u00f6l\u00fcme yakla\u015ft\u0131\u011f\u0131n\u0131 d\u00fc\u015f\u00fcnd\u00fckleri \u00e7ocuklar\u0131n\u0131n anne ile ayn\u0131 tarihte olan do\u011fum g\u00fcn\u00fcn\u00fc hi\u00e7 kutlamad\u0131. Ge\u00e7ti\u011fimiz aylarda ise umut olacak ilac\u0131n onaylanmas\u0131n\u0131n ard\u0131ndan ailenin \u00fcmidi tekrar ye\u015ferdi. Anne ve Umutcan\u2019\u0131n do\u011fum tarihi olan 14 \u015eubat, m\u00fcjdeli haberin ard\u0131ndan ailenin ilk do\u011fum g\u00fcn\u00fc oldu. Tuttu\u011fu tak\u0131m olan Fenerbah\u00e7eli pastan\u0131n mumlar\u0131n\u0131 g\u00fc\u00e7l\u00fc bir nefesle \u00fcfleyen Umutcan, 6 ya\u015f\u0131na girdi. Umutcan\u2019\u0131n ilk dile\u011fi ise onay alamayan di\u011fer SMA hastas\u0131 arkada\u015flar\u0131n\u0131n ilac\u0131 alabilmesi oldu. Umutcan, pilot ve futbolcu olma hayalini de tekrarlayarak kendisine verilen hediyeleri heyecanla a\u00e7t\u0131.<\/p>\n

“\u0130lk defa isteyerek kutluyoruz”<\/p>\n

En son teyzesinin Umutcan i\u00e7in bir kez do\u011fum g\u00fcn\u00fc haz\u0131rlad\u0131\u011f\u0131n\u0131 anlatan anne Rukiye Cop, “\u0130lk defa biz kendimiz organize ettik. Daha \u00f6nce teyzesi haz\u0131rlam\u0131\u015ft\u0131, istemedi. \u0130lk defa isteyerek biz kendimiz kutluyoruz. Umutcan\u2019la do\u011fum g\u00fcn\u00fcm\u00fcz ayn\u0131” dedi. \u0130lac\u0131n onaylanmas\u0131n\u0131n ard\u0131ndan hala re\u00e7eteli rapor i\u00e7in hastaneye gidip geldiklerini ancak yapt\u0131ramad\u0131klar\u0131n\u0131 s\u00f6yleyen anne Rukiye Cop “Bu bizim i\u00e7in zaman kayb\u0131 demek. Bizim i\u00e7in zaman \u00e7ok \u00f6nemliyken bir 15 g\u00fcn daha beklemek zorunda kalaca\u011f\u0131z. \u0130la\u00e7 da 1 ay sonraya sarkacak. Bir doktorumuzun muayenesi ve imzas\u0131 kald\u0131 raporda. Ay\u0131 26\u2019s\u0131nda raporu g\u00f6nderdikten sonra gelecek. \u0130lac\u0131n\u0131 da Mart sonu gibi ba\u015flayacak” dedi.<\/p>\n

“Makineye ba\u011fl\u0131 olan \u00e7ocuklar\u0131n da ya\u015famaya hakk\u0131 var”<\/p>\n

Zaman\u0131n SMA hastalar\u0131n\u0131n aleyhine i\u015fledi\u011fini vurgulayan Cop, onay verilmesine kar\u015f\u0131n baz\u0131 kriterlerin hastalar\u0131n ve ailelerin i\u015fini zorla\u015ft\u0131rd\u0131\u011f\u0131n\u0131 savundu. Cop son olarak “Makineye ba\u011fl\u0131 olan \u00e7ocuklar\u0131n da ya\u015famaya hakk\u0131 var” diyerek, kriterlerin tamamen kald\u0131r\u0131lmas\u0131n\u0131 istedi\u011fini dile getirdi.

\"\u2019Umut\u2019land\u0131ran <\/a> <\/div> <\/div>
\"\u2019Umut\u2019land\u0131ran <\/a> <\/div>
\"\u2019Umut\u2019land\u0131ran <\/a> <\/div> <\/div> <\/div>
\"\u2019Umut\u2019land\u0131ran <\/a> <\/div> <\/div>
\"\u2019Umut\u2019land\u0131ran <\/a> <\/div> <\/div>
\"\u2019Umut\u2019land\u0131ran <\/a> <\/div> <\/div> <\/div>
\"\u2019Umut\u2019land\u0131ran <\/a> <\/div>
\"\u2019Umut\u2019land\u0131ran <\/a> <\/div> <\/div>
\"\u2019Umut\u2019land\u0131ran <\/a> <\/div> <\/div> <\/div>
\"\u2019Umut\u2019land\u0131ran <\/a> <\/div> <\/div>
\"\u2019Umut\u2019land\u0131ran <\/a> <\/div> <\/div> <\/div>
\"\u2019Umut\u2019land\u0131ran <\/a> <\/div> <\/div> <\/div> <\/div><\/p>\n","protected":false},"excerpt":{"rendered":"

ANTALYA’DA SP\u0130NAL M\u00dcSK\u00dcLER ATROF\u0130 (SMA) HASTALI\u011eINA YAKALANAN \u00c7OCUKLARIN 5 YA\u015eINA KADAR YA\u015eADI\u011eINI \u00d6\u011eREND\u0130KTEN SONRA DO\u011eUM G\u00dcN\u00dc KUTLAMAK \u0130STEMEYEN SMA T\u0130P 2 HASTASI UMUTCAN KILI\u00c7, HASTALI\u011eINA UMUT OLACAK \u0130LACIN ONAYLANMASININ ARDINDAN ANNES\u0130YLE AYNI G\u00dcN OLAN DO\u011eUM G\u00dcN\u00dcN\u00dc 4 YIL ARADAN SONRA B\u00dcY\u00dcK B\u0130R SEV\u0130N\u00c7LE KUTLADI. UMUTCAN, PASTANIN MUMLARINI \u00dcFLED\u0130KTEN SONRA \u0130LK D\u0130LE\u011e\u0130 \u0130SE SMA HASTASI ARKADA\u015eLARININ \u0130LACINI ALAB\u0130LMES\u0130 OLDU.<\/p>\n","protected":false},"author":1,"featured_media":35392,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[658],"tags":[13379,3469,1068,85,37,3963,10126,13380],"class_list":["post-35391","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-saglik","tag-umutlandiran","tag-ardindan","tag-dogum","tag-gunu","tag-ilk","tag-kutlamasi","tag-mujdenin","tag-pastali"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/i0.wp.com\/www.tvturk.com\/wp-content\/uploads\/2019\/02\/umutlandiran-mujdenin-ardindan-pastali-ilk-dogum-gunu-kutlamasi_ce5ac66.jpg?fit=1000%2C666","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/paKIfm-9cP","_links":{"self":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/35391","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/comments?post=35391"}],"version-history":[{"count":1,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/35391\/revisions"}],"predecessor-version":[{"id":35405,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/35391\/revisions\/35405"}],"wp:featuredmedia":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media\/35392"}],"wp:attachment":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media?parent=35391"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/categories?post=35391"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/tags?post=35391"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}