{"id":68115,"date":"2019-03-03T13:10:09","date_gmt":"2019-03-03T10:10:09","guid":{"rendered":"http:\/\/www.tvturk.com\/index.php\/sma-hastasi-cocuk-ilac-yardimi-bekliyor\/"},"modified":"2019-03-03T13:10:14","modified_gmt":"2019-03-03T10:10:14","slug":"sma-hastasi-cocuk-ilac-yardimi-bekliyor","status":"publish","type":"post","link":"http:\/\/www.tvturk.com\/index.php\/sma-hastasi-cocuk-ilac-yardimi-bekliyor\/","title":{"rendered":"SMA hastas\u0131 \u00e7ocuk ila\u00e7 yard\u0131m\u0131 bekliyor"},"content":{"rendered":"

Tokat\u2019ta ya\u015fayan SMA Tip 2 hastas\u0131 8 ya\u015f\u0131ndaki Turan Ege, sa\u011fl\u0131\u011f\u0131na kavu\u015fmas\u0131 i\u00e7in ila\u00e7 yard\u0131m\u0131 yap\u0131lmas\u0131n\u0131 bekliyor.<\/p>\n

Tokat\u2019\u0131n Erbaa il\u00e7esinde ya\u015fayan H\u00fclya ve Murat \u015eahin \u00e7iftinin \u00e7ocuklar\u0131 Turan Ege, 1 ya\u015flar\u0131nda iken y\u00fcr\u00fcyememesi nedeniyle g\u00f6t\u00fcr\u00fcld\u00fc\u011f\u00fc doktor taraf\u0131ndan kas hastal\u0131\u011f\u0131 olarak adland\u0131r\u0131lan SMA Tip 2 te\u015fhisi konuldu. Hastal\u0131\u011f\u0131 nedeniyle kas ve sinirleri erimeye ba\u015flayan, y\u00fcr\u00fcmekte zorluk \u00e7eken Turan Ege\u2019nin tedavisi Tokat Gaziosmanpa\u015fa \u00dcniversitesi Sa\u011fl\u0131k Ara\u015ft\u0131rma ve Uygulanma Hastanesi \u00c7ocuk Yo\u011fun Bak\u0131m servisinde devam ediyor. 8. ya\u015f g\u00fcn\u00fcn\u00fc hastanede kutlayan Turan Ege\u2019nin ailesi \u00e7ocuklar\u0131n\u0131n sa\u011fl\u0131\u011f\u0131na kavu\u015fmas\u0131 i\u00e7in pahal\u0131 olan ila\u00e7lar\u0131n temin edilmesini bekliyor. Hastanede do\u011fum g\u00fcn\u00fcn\u00fc kutlad\u0131\u011f\u0131n\u0131 ifade eden Turan Ege, arkada\u015flar\u0131n\u0131 \u00f6zledi\u011fini ko\u015fup oynamak istedi\u011fini s\u00f6yledi.<\/p>\n

“B\u00fct\u00fcn SMA hastalar\u0131na ila\u00e7 tedavisi als\u0131n istiyoruz\u201d<\/p>\n

Anne H\u00fclya \u015eahin, o\u011flunun s\u00fcrekli yo\u011fun bak\u0131mda tedavi g\u00f6rd\u00fc\u011f\u00fcn\u00fc s\u00f6yledi. SMA tip 2 hastal\u0131\u011f\u0131na yakalanan o\u011fluna baz\u0131 kriterlere uygun olmad\u0131\u011f\u0131 i\u00e7in ila\u00e7 \u00f6demesi yap\u0131lamad\u0131\u011f\u0131n\u0131 ileri s\u00fcren \u015eahin, \u201cB\u00fct\u00fcn SMA hastalar\u0131na ila\u00e7 tedavisi als\u0131n istiyoruz. 7 y\u0131ld\u0131r o\u011flum yo\u011fun bak\u0131mlarda kal\u0131yor. \u00c7ocu\u011fumda b\u0131kt\u0131 art\u0131k elleri hep i\u011fne yaras\u0131. Art\u0131k hastane g\u00f6rmek istemiyoruz, ilac\u0131m\u0131z\u0131 istiyoruz. \u0130stanbul\u2019a gidip re\u00e7etemizi yazd\u0131raca\u011f\u0131z ama \u00e7ocu\u011fum yo\u011fun bak\u0131mlardan \u00e7\u0131kamad\u0131\u011f\u0131 i\u00e7in oraya da gidemiyoruz. \u00c7ocu\u011fumun ilac\u0131 olsa daha iyi olacak. O nedenle art\u0131k kriter olsun istemiyoruz. \u00c7\u00fcnk\u00fc b\u00fct\u00fcn SMA hastalar\u0131 als\u0131n ilac\u0131 istiyoruz. 7 y\u0131ld\u0131r hastanelerdeyiz \u00e7ocu\u011fum buralardan kurtulsun istiyorum. Evinde ya\u015fas\u0131n, d\u00fcn do\u011fum g\u00fcn\u00fc idi. Do\u011fum g\u00fcn\u00fcn\u00fc evinde kutlas\u0131n istiyorum. Bunun i\u00e7inde ilac\u0131m\u0131z\u0131 istiyoruz\u201d dedi.<\/p>\n

Turan Ege\u2019nin evde e\u011fitim ald\u0131\u011f\u0131n\u0131 ifade eden \u015eahin, o\u011flunun akci\u011fer enfeksiyonu oldu\u011fu i\u00e7in k\u0131\u015f\u0131n d\u0131\u015far\u0131 \u00e7\u0131kamad\u0131\u011f\u0131n\u0131 s\u00f6zlerine ekledi.<\/p>\n

\u00d6te yandan SGK\u2019n\u0131n, SMA 1 tip hastalar\u0131na \u00f6deme yapt\u0131\u011f\u0131, SMA 2 tip hastalar\u0131na da baz\u0131 kriterlere g\u00f6re ila\u00e7 deste\u011fi \u00f6demesi yapt\u0131\u011f\u0131 \u00f6\u011frenildi.

\"SMA <\/a> <\/div> <\/div>
\"SMA <\/a> <\/div> <\/div> <\/div>
\"SMA <\/a> <\/div> <\/div>
\"SMA <\/a> <\/div>
\"SMA <\/a> <\/div> <\/div> <\/div>
\"SMA <\/a> <\/div> <\/div> <\/div> <\/div><\/p>\n","protected":false},"excerpt":{"rendered":"

TOKAT\u2019TA YA\u015eAYAN SMA T\u0130P 2 HASTASI 8 YA\u015eINDAK\u0130 TURAN EGE, SA\u011eLI\u011eINA KAVU\u015eMASI \u0130\u00c7\u0130N \u0130LA\u00c7 YARDIMI YAPILMASINI BEKL\u0130YOR.<\/p>\n","protected":false},"author":1,"featured_media":68116,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"jetpack_post_was_ever_published":false},"categories":[1],"tags":[4378,1008,11633,3712,8949,6420],"class_list":["post-68115","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-genel","tag-bekliyor","tag-cocuk","tag-hastasi","tag-ilac","tag-sma","tag-yardimi"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/i0.wp.com\/www.tvturk.com\/wp-content\/uploads\/2019\/03\/sma-hastasi-cocuk-ilac-yardimi-bekliyor_dc36b28.jpg?fit=1000%2C671","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/paKIfm-hID","_links":{"self":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/68115","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/comments?post=68115"}],"version-history":[{"count":1,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/68115\/revisions"}],"predecessor-version":[{"id":68123,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/posts\/68115\/revisions\/68123"}],"wp:featuredmedia":[{"embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media\/68116"}],"wp:attachment":[{"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/media?parent=68115"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/categories?post=68115"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.tvturk.com\/index.php\/wp-json\/wp\/v2\/tags?post=68115"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}